Yes, I would try to straighten out what people think of epilepsy and get them to think clearly that we are normal human beings but just have this condition. It is our medication that slows us down but we still can work at a job.

Yes I would. I'm over the 65 mark. No kids to take care of, no job or any real responsibility. It would be the perfect time. I have lived with this for 58 years. My seizures have become refractory and status epileptus. I've already been told because I went so many years untreated that they may not be able to help me. And I'm prepared to handle that. But I would like it to count for something. I would love to see the horrible, debilitating condition eradicated. And my future posterity, would never have to be concerned that any of them will have it. I want it gone, out of the human culture and off this planet. Sheryl

Yes, but only if my current Neuro was conducting the study.

You and everyone else input does make a difference in someone's life with whatever condition you or they have, a good group of people who are here helping with others and vise versa, my opinion

I have been in quite a few studies here in Canada. They tried ivig tmt and I am one of the first in Canada to try Xcopri. I am also helping with how people with epilepsy are in the workplace and how to manage it. I was a medic in the Canadian forces and also have worked in healthcare facilities for years. I love helping others with my experience.