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I Have Absence Or Partial Complex Seizures. I Have A Seizure Calendar To Keep Track.

A MyEpilepsyTeam Member asked a question 💭
Stamford, CT

I cannot remember how long a actual seizure is, often. The great confusion I think may be something called Post-ictal. What is the seizure? I do not know about what the recovery time is. After a large one I may sleep for a while. Lack of sleep is a Trigger.

September 14
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A MyEpilepsyTeam Member

I understand you Leslie. Urinate very embarrassing

September 15
A MyEpilepsyTeam Member

I give the date and type of seizure, and will provide a guesstimate time during our meeting discussion should the question come about. My case is specific for my needs just as your case is specific to your needs. The best I can suggest is take notes when each seizure takes place that you feel will help your epilepsy specialist and continue having open communication with your epilepsy specialist so they are aware what is taking place.

September 15
A MyEpilepsyTeam Member

I was always told that a seizure of 5 minutes or more might mean 911 should be called. Maybe my Neurologist and Epileptologist would not expect us to be aware of how long it took to recover. Because Absence and Partial Awareness means you are at least only somewhat aware, I would not know how to describe one of the larger events. If I watch triggers, with the meds I take fortunately I am controlled.

September 14
A MyEpilepsyTeam Member

It can be difficult to remember exactly how long a seizure lasts or what happened during it. The confusion and tiredness after a seizure is called the "post-ictal" state. Tracking seizures in a calendar is helpful for identifying patterns and informing your doctor. Typical absence seizures usually last less than 30 seconds Show Full Answer

It can be difficult to remember exactly how long a seizure lasts or what happened during it. The confusion and tiredness after a seizure is called the "post-ictal" state. Tracking seizures in a calendar is helpful for identifying patterns and informing your doctor. Typical absence seizures usually last less than 30 seconds, while atypical absence seizures last over 30 seconds. Focal impaired awareness seizures tend to last 1-2 minutes. Let your doctor know how long the seizure and post-ictal state seems to last for you. Lack of sleep is a common seizure trigger. Having a consistent sleep schedule may help reduce seizures. If you notice your seizures tend to happen after having a specific food or doing a certain activity, tracking that in your calendar can also be informative for your doctor.

September 14
A MyEpilepsyTeam Member

My Neurologist will schedule another EEG at home for 72 hours. 3 to days of being on camera with the EEG on. Because I am still having seizures, she also raised the Briviact Dose at night to 150 from 100 mgs at night. She did say I was not expected to remember how long they were, or the recovery period, though. I am releived.

September 23

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