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Epilepsy Surgery?
Has anyone ever had left temporal lobe resective surgery? Has it been positive or negative? Do you have side effects? Would you recommend it? A new neurologist at Mayo Clinic has told me that’s my best, obvious option (I’m drug resistant, and my VNS has become less and less effective over its 6 years with me!).
Give me your thoughts, please… brain surgery is SCARY.
In Sept . Of 98” , I had a brain surgery, on my left temporal lobe of my brain. It didn’t make me seizure free , but it did help reduce my seizure frequency down, from severe to mild and moderate seizures.
I did try the VNS also., in 2005. It didn’t work well . It lasted for about 5yrs , when it started to die.
In 2022 I was implanted with the DBS . That did help reduce my seizures by half .
I hope what ever your Dr. Decides, works for you.
Resective surgery like a temporal lobectomy can be very effective for some people with drug-resistant epilepsy, but it is understandably a difficult decision. Research shows that about 60-70% of people who undergo temporal lobe resection become seizure-free afterward. Side effects may include temporary weakness or numbness Show Full Answer
Surgery effects everyone differently. The outcome will certainly be different from person to person. Yes, you will have side effects. How long will depend on how you recover. Make sure you are tested to find out which surgery will be best for you. And ask 999 questions so you know what is going on before surgery and after surgery and why. There are several surgeries available for people that are drug resistant. Ask what they are and why not use those. Testing will help determine which is suitable for you. Ask the surgeon has she/he done the surgery before? When you have all your questions answered, then you will have a good idea to decide if it is right for you.
@A MyEpilepsyTeam Member and @A MyEpilepsyTeam Member we can check this out together! I’ll be thinking of you and praying for you both! It’s good to have someone who’s feeling it with me. I think in the end I will do this… so much has failed and I’m running out of options. I didn’t even know this was an option for me so I’m kind of getting used to the idea. You’re ahead of me in the game… please let me know how you’re doing! Good wishes to you both! 😍 @A MyEpilepsyTeam Member and @A MyEpilepsyTeam Member thanks so much for your success stories… they make my heart calmer! 24 years, huh, mantle? That’s so awesome! And Melissa, I think you’re my twin… I’ve been a worship leader for years (had to stop because the VNS was going off every three minutes… not good for a lead singer!) and I’m also on 4 meds… and have tried probably another 4! When I got on the VNS, I went and got my 2 year degree in English language…form, structure, etc., with the hope of a small business tutoring by turning ‘C’ term papers into ‘A’s! Maybe if this surgery is a success, I can go back and get the last two years!! 🥰
I had a left temporal lobectomy in 2000. After an almost fatal car accident, I wanted a chance at better control of my seizures. When I found I could have the surgery, they gave me these statistics: 95% chance of better control, 85% chance of total control ON meds, 70% chance of total control OFF meds. I have been seizure-free for almost 24 years and off meds for 18 years.
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