Does The Condition Me Or You Have Seem To Play A Role On How You See Yourself? Curious
I think that at first when diagnosed with it did, I kinda know what was going on with me and what other people thought about me as well, I have to admit it wasn't a easy thing to do in the situation at hand, I felt like a outsider and kinda a weird person in general, but I over the years came to get to understand what I had, that took me time as well, but I got to the point of finally accepting the condition of epilepsy and live with, it's alot better than before and is more stable than before… read more
Just me and my epilepsy!!
I feel like a regular person - no restrictions.
It's understandable that an epilepsy diagnosis can impact one's self-image and make someone feel like an outsider. However, over time many come to accept their condition. As one member shared, "The more I learn about epilepsy, the more I realize that it's not my fault." Staying informed and connecting with others who Show Full Answer
Hang in there and try and stay pos,
When I first was diagnosed I was only 5 and I doubt I understood it I just knew I had to take a pill for it. Since my parents never talked about it neither did I. I just ran wild with my siblings and friends having fun doing what kids do according to the season up north. I was extremely lucky since I never hurt myself the pills must have been working 100,%. The first time anyone sat me down and actually talked to me about epilepsy was my grandmother when she told me about my aunt who died from epilepsy as a teen. It was my dad's sister and he never mentioned his little sister to me. My grandmother swore me to secrecy and not say a word to anyone that I know about her. At that point I was a bit anxious about epilepsy but than I thought I am doing really well and I just need to live my life not be scared of a what if. And I did I kept up all my sports my favorite winter was skiing and we went all the time. Of course ice skating was #2 than my community girls hockey team. Yeah I loved winter. I let what my grandmother told me get buried in the back of my brain. It wasn't till I was working for 7 years at the same place and had 3 little ones that I had a grand mal at night and woke up in the ambulance as we are arriving at the hospital. Talk about confused. I remember going to bed and now here I was. I spent I don't remember how many days in the hospital and the dilating didn't work i keep having seizures. I know they finally put me on tegretol and my eeg was much better. They said I could go back to work. Of course when I got there every one knew why I was out. Only my close friends that I saw out of work didn't treat me weird and the two people on either side of me. When your desks are close even with a 1/2 wall cubicle around you, I you get to know them well and they were just concerned for me. I decided that if a person doesn't excepted me because I have epilepsy than they aren't worth knowing. I have never hide the fact that I have epilepsy. Why don't you drive or drink etc because I have epilepsy. I have had people tell me well I know some who has it and they do. Well that's their choice but alcohol causes seizures and you have to remain seizure free 6mo to drive and if you have a seizure you have to stop driving. They said well do it anyways they live their lives and have fun not like you. I always said I have lots of fun with my family, my little ones and hubby are all I need.
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