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Does The Condition Me Or You Have Seem To Play A Role On How You See Yourself? Curious

A MyEpilepsyTeam Member asked a question 💭
Englewood, CO

I think that at first when diagnosed with it did, I kinda know what was going on with me and what other people thought about me as well, I have to admit it wasn't a easy thing to do in the situation at hand, I felt like a outsider and kinda a weird person in general, but I over the years came to get to understand what I had, that took me time as well, but I got to the point of finally accepting the condition of epilepsy and live with, it's alot better than before and is more stable than before… read more

October 12 (edited)
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A MyEpilepsyTeam Member

Just me and my epilepsy!!

October 12
A MyEpilepsyTeam Member

I feel like a regular person - no restrictions.

October 12
A MyEpilepsyTeam Member

It's understandable that an epilepsy diagnosis can impact one's self-image and make someone feel like an outsider. However, over time many come to accept their condition. As one member shared, "The more I learn about epilepsy, the more I realize that it's not my fault." Staying informed and connecting with others who Show Full Answer

It's understandable that an epilepsy diagnosis can impact one's self-image and make someone feel like an outsider. However, over time many come to accept their condition. As one member shared, "The more I learn about epilepsy, the more I realize that it's not my fault." Staying informed and connecting with others who understand the experience can provide perspective and support. Rather than judging yourself, focus on self-care and being your best self. As one member said, "After years of feeling like I need to be better, stronger, healthier, and in control, I now know I am enough." Prioritizing your needs and not hiding your condition anymore can be empowering.

October 12
A MyEpilepsyTeam Member

Hang in there and try and stay pos,

October 12
A MyEpilepsyTeam Member

When I first was diagnosed I was only 5 and I doubt I understood it I just knew I had to take a pill for it. Since my parents never talked about it neither did I. I just ran wild with my siblings and friends having fun doing what kids do according to the season up north. I was extremely lucky since I never hurt myself the pills must have been working 100,%. The first time anyone sat me down and actually talked to me about epilepsy was my grandmother when she told me about my aunt who died from epilepsy as a teen. It was my dad's sister and he never mentioned his little sister to me. My grandmother swore me to secrecy and not say a word to anyone that I know about her. At that point I was a bit anxious about epilepsy but than I thought I am doing really well and I just need to live my life not be scared of a what if. And I did I kept up all my sports my favorite winter was skiing and we went all the time. Of course ice skating was #2 than my community girls hockey team. Yeah I loved winter. I let what my grandmother told me get buried in the back of my brain. It wasn't till I was working for 7 years at the same place and had 3 little ones that I had a grand mal at night and woke up in the ambulance as we are arriving at the hospital. Talk about confused. I remember going to bed and now here I was. I spent I don't remember how many days in the hospital and the dilating didn't work i keep having seizures. I know they finally put me on tegretol and my eeg was much better. They said I could go back to work. Of course when I got there every one knew why I was out. Only my close friends that I saw out of work didn't treat me weird and the two people on either side of me. When your desks are close even with a 1/2 wall cubicle around you, I you get to know them well and they were just concerned for me. I decided that if a person doesn't excepted me because I have epilepsy than they aren't worth knowing. I have never hide the fact that I have epilepsy. Why don't you drive or drink etc because I have epilepsy. I have had people tell me well I know some who has it and they do. Well that's their choice but alcohol causes seizures and you have to remain seizure free 6mo to drive and if you have a seizure you have to stop driving. They said well do it anyways they live their lives and have fun not like you. I always said I have lots of fun with my family, my little ones and hubby are all I need.

October 12

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