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Anyone With Nocturnal Seizures?
I used to have them in the night significantly when they had changed my medicines. This is when my seizures got more troublesome. This was dreadful. At least I am now ten years post-surgery and ten years seizure free.
Are you still having them? I am 40 years old now. They stop for like 8-9 years then came back since February of this yearš„
@A MyEpilepsyTeam Member
No, I donāt have them anymore. At least, I can say I havenāt had them in several years. Ugh! Iām so sorry yours have returned. While I canāt suggest anything, I can at least share with you my experience.
My quality of sleep was hideous. It took a long time to improve. It meant adjustment in meds, forcing myself to establish and maintain a sleep schedule. I had to change some of my daily evening habitsā¦. Iāve had to work hard on my stress, anxiety, and other mental health concerns. I wound up finding a psychologist and have been attending appointments on a regular basis. I kept a journal close at hand. I increased my daily intake of water and paid more attention to what I ate and when I ate. I have a weird nighttime eating habit. Iāll wake up in the middle of the night, eat something, and then go back to bedā¦. I did a lot of crying, praying, yelling, screamingā¦and talking with Godā¦. Eventually, I changed my perspective. My thoughts moved away from focusing on my seizures and toward focusing on my health and well-being in all aspectsā¦
In all honesty, i donāt know if these changes made a difference or if I'm just lucky. All I know is the nocturnal seizures eventually went away.
Hopefully, if theyāve gone away once, theyāll go away again. Just be open and honest and as wide-eyed as possible regarding yourself. And prayers that you have medical staff whom you trust so you can be open and honest with them. Ugh! Iām so sorry. Have faith and take comfort in that they went away once, which means thereās a chance they will go away again. š§”šš¼šŖš¼
Yes, I often did. When Iād wake up, Iād feel as though I couldnāt move out of bed. Ugh, the pain and soreness. Those were rough times. I dread when meds lose their effectiveness.
It's understandable to have concerns about nocturnal seizures. According to the information, about 12% of people with epilepsy experience seizures during sleep. These often go undiagnosed initially because the person is unaware they are happening. There are some common seizure types more prone to occurring at night, like Show Full Answer
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