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Hello Everyone I’m Ariel My 14 Year Old Daughter Was Just Diagnosed With Epilepsy And What Causes This ?

A MyEpilepsyTeam Member asked a question 💭
Olla, LA

I’m wondering what cause epilepsy. Her mri was clear so now what do I have to expect she’s currently taking keepra aren’t there bad side effects to this drug? She also been having really bad headaches. Any suggestions

October 15
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A MyEpilepsyTeam Member

I was on Keppra for only 2 wks and I became a very nasty rude person and this is not my personality and my mother said u have to get off of this med it is changing u…so I agree it def has bad side effects

October 16
A MyEpilepsyTeam Member

I am also currently on keppra and it has actually helped me. Seizures have reduced. Usually have headache before or after having a seizure but I even stay sometimes a week with no seizure.

October 15
A MyEpilepsyTeam Member

To Ariel's Mom, keppra gave me headaches as well. Once I saw a neurologist that specialized in adult seizures she put me on keppra ER. I still get the headaches but not as often. So if nothing else ask for the extended release that should help. Good luck, even ask if there is another medication they would recommend. Topamax is another good medication. Good luck and I've said prayer for you and your daughter.

October 15
A MyEpilepsyTeam Member

While I remember a lot of things when I was younger that I now realize were probably absent seizures, no one noticed and it didn’t impact me very much. When I was 18 I had my first grand mal seizure all of my test were clear and there was no signs of anything that could be causing the seizure. I started having more grand mal seizures and an eeg was done confirming my diagnosis however there is still no known cause of why. Keppra was the first medication I tried and it gave me awful headaches and changed my behavior a lot(keppra rage). I was then put on topamax and it made me loose about 20lbs in 5 months, I had no appetite. I have gone through a couple of medications but I am now currently on lamictal and clobazam and have been grand mal seizures free for a year. I hope your daughter gets the best help she can. I’m praying for you both and always happy to help with questions.

October 15
A MyEpilepsyTeam Member

She’s only had 2 seizures grandmal seizures the others are like when she’s dazed out or in her sleep I’m terrified so do yall think the keepera is causing the headaches? They so bad my baby cries and she can tolerate pain fairly well

October 15

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