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My Child Was Diagnosed In September, We Went In For An MRI Thinking It Would Give Us Info But Her MRI Is Perfectly Normal Anyone Else Have T

A MyEpilepsyTeam Member asked a question 💭
Atlanta, GA
November 1
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A MyEpilepsyTeam Member

Yes like Margery said, having a clear MRI is a good sign of no damage to the brain and the only way to see if there is actual seizure activity is to have an EEG done. When I had my first seizure my MRI was clean too however my doctor at the time wasn’t very smart and never did a EEG and said I was just passing out and had POTS so I was put on a medication for that. I kept having seizure so we knew something was wrong and we changed to a very nice doctor who did an EEG right away and saw the seizure activity and was able to give me an actual diagnosis.

November 1
A MyEpilepsyTeam Member

To ease mind better look thru history at how many geniuses also had seizures Michelangelo, Poe, Einnstein, Socrates, Nobel etc before nuff known bout brain to explain it. My Mom told me I was amazed Big diff we know better & how to help with meds. Ask if she ever had any weird feelings, can tell her why now too.Listen only to Dr bout best meds for her no bad sides or Dr will take her off it then too.

November 1
A MyEpilepsyTeam Member

Thank you for your kind words, my daughter is 12 and her first seizure was on her birthday, didn’t see it coming. I am hoping kepra will be the answer. Hope you have a great rest of your day.

November 1
A MyEpilepsyTeam Member

It was very scary for my family as well when I was diagnosed, I’m not sure how old your daughter is but I was 17 when I had my first seizure. I am 24 now, There is no history of epilepsy in my family and came on suddenly. The first medication I was put on was keppra which is a usual go to for drs to prescribe when first diagnosed but it did give me multiple side effects, especially what’s known as keppra rage. I have been through multiple medications and I am currently on lamotragine(lamictal) and clobazam( onfi). This has been the best medication “cocktail “ that has worked well for me and have been seizure free for a while, everyone is different and will react differently to any medication so hopefully the keppra works for her or you find the best one for her. I also have a VNS implant put in 3 years ago but it did not make a difference. I hope your daughter finds the best solution and I wish you guys good luck, I know it’s scary but you are and your daughter are so strong and you sound like an amazing mother. I know how scared my mom was when all of this happened❤️

November 1
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A MyEpilepsyTeam Member

Thank you to all for your help. This is scary for me right now because this is very new to us, she only seems to have seizures at night. Her EEG did show presence of seizures and she has been put on lepra but has continued to have them, they upped her medicine today and I’m hoping this will be what’s needed.

November 1

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