Thank you all for your replies. Ive been epileptic from being 9yrs with no definite cause of my seizures. Ive had every single type of seizure which makes it hard to diagnose a specific type of epilepsy. I am well controlled now but life still has its challenges as I went undiagnosed for years. I have a form of brain damage after so many years of suffering. Giving birth to my son caused my seizures to return and after losing my mum due to medical negligence has caused me to be very overprotective of him.

Yes things have improved with diagnostics, medicines and acceptance within the wider community. However, it does not stop me worrying. I do consider us lucky that I know what to expect with investigations, how to treat his epilepsy and give his medication. That being said, when you do an emergency stop in the middle of the road because your child's airway obstructs due to having a seizure in his car seat is the scariest thing I could possibly experience as a first time mum who is still grieving and suffering from a great loss.

I don't have any relatives who've been diagnosed with epilepsy and sadly my grandparents aren't with us for me to ask.

I have been looking through my medical journals (am a registered nurse working in anaesthetics and recovery in a trauma hospital) the artical is very accurate and relivent to my son's condition. I agree with Jack and I don't see how it is a bad thing either. The fact that 5 to 10% of all epilepsy cases are diagnosed with. JME and there is no mention anywhere of a child as young as two being diagnosed with this condition is very worrying indeed. The only reason why he is diagnosed is because of my knowledge in paediatrics and epilepsy.

I appreciate your collective replies and responses. However I can't help but feel inappropriately judged by Margery for worrying about my son. I see your view on the situation, but it is very unique and I don't appreciate the snap judgement you have made based on this post.

Who knows who in families had epilepsy? People once thought seizures meant they were insane so it covered up. Dickens had characters with "fits" but no mention of his own cause didn't want to be thought of as crazy. Can't imagine how people felt years ago not even knowing why their seizures occurred. Great you were able to have modern surgery to help. For me not an option but at least have meds to help. Epilepsy not known bout till 1920s first meds not till 1940s so history of epilepsy unknown before too.

Crazy article that may not even pertain to your son plus check the date. An AI computer begins with I'm so sorry..Please
listen to Dr for best ease of mind & more up to date info. To feel guilty imagine if had a far worse health prob like a faulty heart. Why feel it's so terrible when you have the same but still fine. I"m sure you know how to deal with seizures plus how little epilepsy can hurt anyone thanks to our meds. Hope his MRIs show nothing his EEGs will guide Drs for best most modern treatment. Hugs to you for having a nice bundle of joy My story shows how lucky to be able to have any. L Guy told me of his daughter with MS who had seizures felt they were last thing to worry bout for her.

@A MyEpilepsyTeam Member
I’m sorry to hear this. I didn’t start having seizures until I was 10 years old but my seizures are due to a tragic birth. When I was born the umbilical cord wrapped around my neck and I inhaled poo (Meconium). I wasn’t breathing and the lack of oxygen killed my brain cells. I later started having seizures. I was life flighted 🚁 away from my mom.

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