@A MyEpilepsyTeam Member
I was on Phenytoin & Lamotrigine both at therapeutic levels, fot many years. Like you I was controlled & but once I stopped taking the Phenytoin & slightly increased my Lamotrigine, I felt so much clearer than I had felt in my life. The difference was as if I had been over medicated for the last 40-50 yrs. I guess it had become the norm. But since then Cognition & response time have improved dramatically. Don't be afraid of taking fewer meds.

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A MyEpile...

As you can tell Mary, everyone here has your back. I take 2 types each day...Lamictal and Keppra for over 10 years. It's kept me to about 3 seizures on average each year. I understand your concerns especially since your were seizure free for 2 + years. I was seizure free for almost a year and then had one. It's so depressing when one thinks they have epilepsy beat. My prayers are with you. Please come back to our network and let us know how you are doing once this med transition is ongoing.

I’m taking 5different AED meds plus my seizure recovery medicine. But that only taken as needed.

Hi
I'm on 2 different kinds :
Mysoline and tegratol. I have been on the same ones for 40 years with no issues and have only had 3 seizures since being on them.

been seizure free about 18mo.