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Sorry For The Delay But When I Went To App My Doc Said He Saw Spikes On My EEG. My Others Before Were All Normal.

A MyEpilepsyTeam Member asked a question 💭
Montreal, QC

This threw me off guard. What does this mean? He showed me MRI results from june and said all that white should not be there as he zoomed in and out. I know this is scar tissue from first surgery to remove an AVM. The unsuccessful type of surgery i had to remove the scar tissue 20yrs ago is now no longer done. He said we have new technologies. This is second time he mentioned this. We already booked an app in a few months and doc said if I have ANY seizures before then to call him. I was… read more

1 day ago
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A MyEpilepsyTeam Member

It's understandable to feel thrown off guard and speechless when getting unexpected test results. Spikes on an EEG can indicate seizure activity or an increased risk of seizures. The white matter seen on your MRI likely refers to scar tissue from your previous surgery. It's good your doctor wants to monitor things closely Show Full Answer

It's understandable to feel thrown off guard and speechless when getting unexpected test results. Spikes on an EEG can indicate seizure activity or an increased risk of seizures. The white matter seen on your MRI likely refers to scar tissue from your previous surgery. It's good your doctor wants to monitor things closely and that you're preparing questions. Recording appointments can help capture key details. The key is open, ongoing communication with your care team.

1 day ago
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member i could tell this doc is good 20 or more when I first him. He really cares even when I'm having probs with meds. These type of ppl are hard to find. I am very thankful. I am sometimes intimidated by his knowledge. My sis said to write down questions before next app. It's funny 20yrs ago is was invincible 💪 but now in late forties I'm concerned. I was thinking maybe if I ask him if I could record our appointments 🤔. Idk it jst seems like I'd be able to go through what he said easily. I'm sure if I asked he'll be patient with my questions and thorough with his answers. I love my neurologist! I hope your day is well. Thanks Jakesen! 💜

19 hours ago
A MyEpilepsyTeam Member

Mike: It sounds like this doctor is good. I would definitely make a list of questions, yes, but do NOT record your appointments. Just write down the important things he says, and if you want, send that material back to him to make sure you got it right. Work with this guy, because it seems like he is trying to work with you. Regards, Jake

1 day ago
A MyEpilepsyTeam Member

I think it would be better if someone went with you to the appointment. I don’t think recording would be allowed. Good luck.

18 hours ago
A MyEpilepsyTeam Member

My MRI show abnormalities do to surgical removals. My EEG shows continual sharp and slow wave at the general focus of my abnormality. If I have a seizure during a record. It turns to faster spike waves and a lot of muscle !

It shows different areas on the machine with sz activity! No sz I show sharp wave at T3, T5. Last test via MRI and another machine my focus was posterior frontal and anterior temporal lobe! Left side! I had 2 brain surgeries but still having seizures some of them changed.

12 hours ago
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