Here In Rural Oregon We're Having A Hard Time Getting Med Coverage With Our Medicare, No Longer Neurologists In Our Area. Anyone Else's Prob
Thank you. That was the best news I've heard all week.
@A MyEpilepsyTeam Member , You’re very welcome. When my local Epilepsy Foundation helped me, I had to fill out some paperwork & they apparently put me on a program they have where I paid them $25.00 dollars a year & it covered my medication, check-up’s with my Neurologist & bloodwork. The one catch was that I had to see their Neurologist but luckily the Neurologist I had started seeing volunteers with my local Epilepsy Foundation, including the others in her office & so I got to continue with seeing my Neurologist but if I needed to get a message to my Neurologist or the Nurse, I had to contact my local Epilepsy Foundation & give them the message & they would pass it along to the doctor or nurse & I couldn’t use the Patient Portal that my doctor’s office has to leave my Neurologist a message, it all had to go through my local Epilepsy Foundation & so that part was a pain but I appreciated their help. The staff is great. I participate in their virtual support groups sometimes, & right now I’m currently participating in a virtual Chronic Disease class they’re offering by Zoom & it’s a 6 week class & we meet once a week for about 2 hours. So you could ask what other events your local Epilepsy Foundation offers. They likely offer a variety of resources. For some reason they don’t have their own website besides what I gave you above & their Facebook. If you have any questions feel free to ask. They don’t want us to go without our meds. Your friend in Texas, Becky
@A MyEpilepsyTeam Member , You’re very welcome. When my local Epilepsy Foundation helped me, I had to fill out some paperwork & they apparently put me on a program they have where I paid them $25.00 dollars a year & it covered my medication, check-up’s with my Neurologist & bloodwork. The one catch was that I had to see their Neurologist but luckily the Neurologist I had started seeing volunteers with my local Epilepsy Foundation, including the others in her office & so I got to continue with seeing my Neurologist but if I needed to get a message to my Neurologist or the Nurse, I had to contact my local Epilepsy Foundation & give them the message & they would pass it along to the doctor or nurse & I couldn’t use the Patient Portal that my doctor’s office has to leave my Neurologist a message, it all had to go through my local Epilepsy Foundation & so that part was a pain but I appreciated their help. The staff is great. I participate in their virtual support groups sometimes, & right now I’m currently participating in a virtual Chronic Disease class they’re offering by Zoom & it’s a 6 week class & we meet once a week for about 2 hours. So you could ask what other events your local Epilepsy Foundation offers. They likely offer a variety of resources. For some reason they don’t have their own website besides what I gave you above & their Facebook. If you have any questions feel free to ask. They don’t want us to go without our meds. Your friend in Texas, Becky
@A MyEpilepsyTeam Member , You’re very welcome. When my local Epilepsy Foundation helped me, I had to fill out some paperwork & they apparently put me on a program they have where I paid them $25.00 dollars a year & it covered my medication, check-up’s with my Neurologist & bloodwork. The one catch was that I had to see their Neurologist but luckily the Neurologist I had started seeing volunteers with my local Epilepsy Foundation, including the others in her office & so I got to continue with seeing my Neurologist but if I needed to get a message to my Neurologist or the Nurse, I had to contact my local Epilepsy Foundation & give them the message & they would pass it along to the doctor or nurse & I couldn’t use the Patient Portal that my doctor’s office has to leave my Neurologist a message, it all had to go through my local Epilepsy Foundation & so that part was a pain but I appreciated their help. The staff is great. I participate in their virtual support groups sometimes, & right now I’m currently participating in a virtual Chronic Disease class they’re offering by Zoom & it’s a 6 week class & we meet once a week for about 2 hours. So you could ask what other events your local Epilepsy Foundation offers. They likely offer a variety of resources. For some reason they don’t have their own website besides what I gave you above & their Facebook. If you have any questions feel free to ask. They don’t want us to go without our meds. Your friend in Texas, Becky
@A MyEpilepsyTeam Member , You’re very welcome. When my local Epilepsy Foundation helped me, I had to fill out some paperwork & they apparently put me on a program they have where I paid them $25.00 dollars a year & it covered my medication, check-up’s with my Neurologist & bloodwork. The one catch was that I had to see their Neurologist but luckily the Neurologist I had started seeing volunteers with my local Epilepsy Foundation, including the others in her office & so I got to continue with seeing my Neurologist but if I needed to get a message to my Neurologist or the Nurse, I had to contact my local Epilepsy Foundation & give them the message & they would pass it along to the doctor or nurse & I couldn’t use the Patient Portal that my doctor’s office has to leave my Neurologist a message, it all had to go through my local Epilepsy Foundation & so that part was a pain but I appreciated their help. The staff is great. I participate in their virtual support groups sometimes, & right now I’m currently participating in a virtual Chronic Disease class they’re offering by Zoom & it’s a 6 week class & we meet once a week for about 2 hours. So you could ask what other events your local Epilepsy Foundation offers. They likely offer a variety of resources. For some reason they don’t have their own website besides what I gave you above & their Facebook. If you have any questions feel free to ask. They don’t want us to go without our meds. Your friend in Texas, Becky
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