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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What’s One Thing About Epilepsy That People Rarely Discuss But Should?

A MyEpilepsyTeam Member asked a question 💭
San Francisco, CA
November 26
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A MyEpilepsyTeam Member

The thing that people not familiar with epilepsy should know is that epilepsy really is like an iceberg. The seizures just part of what we deal with.

December 16
A MyEpilepsyTeam Member

Epilepsy is so much more then a seizure…

December 17
A MyEpilepsyTeam Member

That there all other types of seizures other than the well known Grand-Mal "drop & flop" and effects such as extreme mood changes & being frozen in time or total loss of recollection.

November 26
A MyEpilepsyTeam Member

The attempted suicide rate on keppra is about as high as 30% depending on where you are, thankfully less than 10% succeeds, do the maths on mortality that’s it’s 70% effective in lowering seizures. It barely lowers the mortality rate overall as the suicide rate is so high. Yeah it’s barely discussed but it’s a serious issue medicine will look back on with a bit of shame.

November 29
Hi, this is just a check-in, based on a phrase you mentioned. If you — or anyone else who sees this — is thinking about self-harm, we want to say that you are an important part of this community. No part of this is easy, but there is support that can help. Read more >
A MyEpilepsyTeam Member

How my epilepsy effects everyone else in my family!
I'm guilty of being so wrapped up in keeping myself seizure free and maintaining my epilepsy i don't stop to think about how my condition takes a toll on everyone in my life

November 28

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