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I Asked My Doctor About My Sensitivity To Sound And He Said It's Not Related To Epilepsy Or A Reaction To The Meds - Now What?

A MyEpilepsyTeam Member asked a question 💭
Minneapolis, MN

he didn't know what it was from or have any other suggestions. two years ago, I went to my cousin's wedding and reception. Now I can't walk into a department store without having a reaction and seizure from the background music. It makes me feel so trapped.

November 28
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View reactions
A MyEpilepsyTeam Member

Sorry to hear that! I would think best to do is take action upon how much it affects, or aggravates you. I would say either switch meds or if it doesn't affect you until in an extremely loud area just be careful in how loud it is around you.

November 28
A MyEpilepsyTeam Member

I'm sorry to hear your doctor didn't have any suggestions for what's causing your sensitivity to sound. That must be very frustrating and make situations like going to the store quite difficult. Since loud noises can be a seizure trigger for some with epilepsy, it seems reasonable that your sensitivity could be related even Show Full Answer

I'm sorry to hear your doctor didn't have any suggestions for what's causing your sensitivity to sound. That must be very frustrating and make situations like going to the store quite difficult. Since loud noises can be a seizure trigger for some with epilepsy, it seems reasonable that your sensitivity could be related even if your doctor doesn't think so. I would suggest keeping a log of when you experience reactions to track potential connections to seizures. You could also consider seeing an audiologist or neurologist for a second opinion. As for managing the sensitivity, have you tried noise-canceling headphones or earplugs? These can help block out background noise in public places. Some MyEpilepsyTeam members also recommend asking stores to lower music volume or even turning music off briefly. Don't be afraid to advocate for your needs.

November 28
A MyEpilepsyTeam Member

I was going to suggest noise cancelling earphones, but RenellBailey's suggestion is much better.

December 3
A MyEpilepsyTeam Member

This may sound weird. So sound can overstimulate. Then overstimulation can be the actual trigger. They have these cool hollow earplugs for overstimulation. My daughter uses them at school for Autism. Her classes can be loud, and then she just wants to run for quiet. They work so well for her. It's not the same condition, but they work for simplifying sound to the brain. A suggestion. You can leave me a message if you want help finding them. I got them on Amazon.

November 29
A MyEpilepsyTeam Member

I agree with MyEpilepsyTeam. Keep a log to know where it's coming from & when it's happening. That way, you can find a solution to prevent it.

November 28

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