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What Shall I Do To Help Soothe My Tongue And Gums That I Have Bitten During A Seizure I Had In My Sleep.

A MyEpilepsyTeam Member asked a question 💭
Cambridge, UK
November 30
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A MyEpilepsyTeam Member

I went to my dentist and had a gum guard moulded to wear at night to protect my tongue and cheeks inside my mouth it's free on NHS so you don't have to pay.

December 2 (edited)
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member , I’m sorry to hear about your retainer breaking a little sometimes. I’m probably on my 3rd mouth guard now & so overtime, unfortunately those break as well. Since you wear a retainer I guess you wouldn’t be able to wear a mouth guard. The only thing I can suggest is to talk to your dentist & see if there’s anything they can suggest to help protect your mouth when you sleep & have other seizures in your sleep since it’s known that just the retainer doesn’t help. Even though I wear a mouth guard in my sleep, at times I still bite my cheeks but not much to complain about & that’s usually because I grind my teeth when I sleep. Hopefully one of your doctors can recommend something. Don’t hesitate to ask your dentist. Your friend in Texas, Becky

December 2
A MyEpilepsyTeam Member

Thank you for the advice. I do wear retainers but from the times I've bitten my gums and tongue I've broken the retainers slightly

December 2
A MyEpilepsyTeam Member

My mom gives me a L-Lycine pill which helps heal mouth sores a lot faster from biting my tongue or cheeks

December 2
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member , For future reference, you could look into getting a mouth guard to wear when you sleep at night. My main purpose for wearing a mouth guard is because I have TMJ, where I grind my teeth when I sleep & so it can make my jaw hurt & even with the mouth guard, sometimes in my sleep I bite my cheeks a little & recently had a seizure in my sleep while wearing my mouth guard & bit my bottom lip & it was numb, sore & swollen but nothing compared to a couple years ago when I didn’t have any insurance & my mouth guard had broken & so I couldn’t run to my dentist & have him make me another one. That time my bottom lip was swollen, numb & sore & I had also bitten my tongue & I went to my Family doctor but all she could suggest was an ice pack. After having the recent seizure in my sleep & biting my lip, it made me appreciate my mouth guard so much more being at least the recent one wasn’t as painful on my mouth. If you could look into having your dentist make you a mouth guard that is made to fit your mouth specifically, it might help. But I will warn you that insurance doesn’t usually cover it but things could be different where you live. So having your dentist make you one & paying out of pocket for it, could be a couple hundred dollars or few more, at least that’s what I dealt with. So you could discuss the mouth guard with your dentist & how much it would cost. You could also first try the over the counter ones, but those were to loose for me. I hope your mouth heals soon & that you can find something to protect your mouth from the seizures during your sleep. Welcome to the site. Your friend in Texas, Becky

November 30 (edited)

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