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I Was Told I Have Seizure Tremors Any One Have Them And What Are You Suppose To Do About Them?

A MyEpilepsyTeam Member asked a question 💭
Bakersfield, CA
December 27, 2024
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A MyEpilepsyTeam Member

I'm not sure what you mean by "seizure tremors". Is it only around the time a seizure occurs, or is it in general? I developed tremors, slow shaking, Parkinson's-like tremors, and it was nearly constant. My epileptologist assured me, after a workup, that it wasn't Parkinson's. He re-adjusted my Lamotrigine dosage, and they improved, but still occasionally happened. He originally took me off of Dilantin because of bad side effects before he started me on Lamotrigine. The one med that really gave me problems was Lithium. When I stopped taking it, the list of symptoms under the definition of "ataxia" improved greatly. I still get tremors now and then under severe stress, but it isn't nearly as bad as before, not constant. For me the tremors were definitely related to my meds.

December 31, 2024
A MyEpilepsyTeam Member

My neurologist brought up the idea about surgery for my seizures but due to my heart and lung issues I was denied

December 27, 2024
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A MyEpilepsyTeam Member

I have never heard them call the seizures tremors; I had all kinds of seizures. I had the petite and some that were the most extreme Grand-mals before my brain surgery. I am now more than ten years seizure-free. I would suggest reading up on what needs to be done and reaching out to your local epilepsy foundation. They can give you personal help. We can only offer you what works for us. We are all very different. More personalized care needs to be given. Never give up.

December 27, 2024
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A MyEpilepsyTeam Member

Seizure tremors can be very scary. It's important to stay with the person, time the seizure, and turn them on their side if they vomit to prevent choking. Most seizures end on their own within a few minutes. If one lasts over 5 minutes or they have multiple seizures without fully recovering, call 911. The support of others Show Full Answer

Seizure tremors can be very scary. It's important to stay with the person, time the seizure, and turn them on their side if they vomit to prevent choking. Most seizures end on their own within a few minutes. If one lasts over 5 minutes or they have multiple seizures without fully recovering, call 911. The support of others with epilepsy can help in coping with the fear. Consider joining MyEpilepsyTeam to connect with over 122,000 members who understand life with seizures.

December 27, 2024

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