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Was Disabilty Hard To Get. How Is Your Mental Health Having To Stay Home All The Time And Not Being Able To Work?
@A MyEpilepsyTeam Member , I quit a Dietary Aide job at a nursing/rehab facility in early 2018 & I don’t think I had any insurance at all until my disability was approved & then after approval I had to wait like 6 months & then I finally began getting United Healthcare & Medicare & Medicaid. I worked at a fast food burger place from August 2018 to June 2019 when the new manager wouldn’t accept my doctor notes to be absent from work due to all the arm shaking & other symptoms I was having. A counselor told me that’s against the law. But my local Epilepsy Foundation told me about a clinic that is for people without insurance or are low income. They offer a Family doctor, dentist, counselor & I think a Psychiatrist. They sat down with us & I guess went over my money issues & whatever kind of info they needed & then I think they find what kind of plan or pay scale thing you fit into. They offered a big pink bus & so I got my first mammogram on that & ended up having to go to another office cause they saw spots & wanted to do another test & after that they still saw spots & so they wanted to do a different test where I had to stand up to a machine. It all came back benign luckily. My local Epilepsy Foundation had me fill out some paperwork & put me on a program they had, where I paid $25.00 dollars a year & that covered my medication, bloodwork & check-ups with my Neurologist. When I was put on this program I was told that normally people can’t use their own Neurologist, that while on this program they must use the Epilepsy Foundation’s Neurologist, but luckily my Neurologist & the others in her office, volunteer with them & so I got to keep seeing my regular Neurologist, but if I wanted to leave a message for my Neurologist, instead of calling her office, I had to call my Epilepsy Foundation & leave that message with them in hopes they would pass it along. But your local Epilepsy Foundation could help your son get his medication, etc. You could also ask if they know if there’s a Family clinic for those without insurance. The one here is called Lone Star Circle of Care www.lonestarcares.org . I’ve been seeing the www.healthcare.gov advertised for those who can’t afford insurance, or something like that. So you could check that out. I hope this helps. Feel free to reach out if you have any other questions. Your friend in Texas, Becky
Getting disability benefits approved can be challenging. As one MyEpilepsyTeam member shared, it often requires persistence through multiple denials before getting approved, having thorough medical documentation, and appealing to the federal level if needed. Staying home frequently can negatively impact mental health for Show Full Answer
@A MyEpilepsyTeam Member
My mom went through all the work getting me on disability. My memory would be just as bad not working as if I was working. My stress level is up when I’m stuck at home.
took me a bit over 2 years to get ssd. I had to not work any job for a year, have all my medical reports, list of tests/meds, and keep track of my seizures. I was denied 2 or 3 times until I hired a lawyer then it went through. At first it was hard not being able to work. I was more bored than anything. the only real mental problem I had was accepting the new direction my life was going to go. didn't have any breakdowns or anything like that. I pray all goes well for you
Thank you Becky. Sorry you had to go through all that. What did you do for insurance during the 2 yrs you waited for disability?
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