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A Neutral? As For The Condition (s) We Have, Do You Think You Are Accustomed To It With Your Life And Lifestyle Yet In Your Life? More

A MyEpilepsyTeam Member asked a question 💭
Englewood, CO

I at first when diagnosed with it was something I didn't know what I had or had any idea of what it was was going to live with, I was diagnosed with but I felt unfamiliar with the unknown, I didn't know what to make of it, I felt that way for quite some time, my mom told me that she had the condition of epilepsy also, I heard her try to explain what she said to me and my family, I over the years took it upon myself to do get some information from the medical field etc and the docs I had seen and… read more

January 12
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A MyEpilepsyTeam Member

It's understandable to feel unfamiliar and scared when first diagnosed with epilepsy. Over time, many find ways to accept their condition as part of their life. Staying informed, making lifestyle adjustments, relying on social support, and focusing on what you can control can help one feel more at ease. Living with epilepsy Show Full Answer

It's understandable to feel unfamiliar and scared when first diagnosed with epilepsy. Over time, many find ways to accept their condition as part of their life. Staying informed, making lifestyle adjustments, relying on social support, and focusing on what you can control can help one feel more at ease. Living with epilepsy has challenges, but accepting yourself and not feeling pressure to hide your condition can be empowering. Prioritizing your needs and finding peer support from others with epilepsy can provide comfort and perspective.

January 12
A MyEpilepsyTeam Member

I struggled trying to still maintain my usual lifestyle for most of my late teens and twenties but with maturity I finally accepted it and began building a lifestyle around it instead. It served and is still serving me well in all aspects of my life 😊

January 12
A MyEpilepsyTeam Member

Growing up with being the only one in the family that has epilepsy was hard.

January 12
A MyEpilepsyTeam Member

I was already accustomed to living with a sibling who had it so when I was diagnosed- even though mine wasn’t genetic like his- I took it as a pain in the butt, but didn’t let it stop me from doing everything I wanted. Over the years as it progressed and got worse, I had to start adjusting my lifestyle to avoid having seizures but it still didn’t bother me; I was used to it. But when it got so bad I was no longer able to drive or work I had to readjust my way of thinking and double think things that I used to do no problem such as going up a ladder, using power tools and simply going out to walk the dog. That was the biggest adjustment I had to make. But I found out quickly who were my real friends and support system. So at first it didn’t bother me at all; but it did afterwards with being on permanent disability at a relatively young age and then finding different things to occupy my mind.

January 12
A MyEpilepsyTeam Member

It wasn’t easy growing up with the many challenges with Epilepsy and learning how to adapt and find alternative ways to live , and get around , with it .

January 12

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