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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anyone Else Have A Cerebral Cavernoma Or Development Venous Abnormality?

A MyEpilepsyTeam Member asked a question 💭
Pittsburgh, PA

Hi so I have both a cerebral cavernoma and a developmental venous anormality I saw they can cause neurological issues but not sure how common epilepsy caused by them are. Does anyone else have one or both as well?

January 22
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A MyEpilepsyTeam Member

I had an AVM that ruptured in my brain . I was told after it ruptured that I should have been getting treatment for it. I was born with it. Bottom line I hope you find out what this is and get treatment for it if needed.

7 days ago
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A MyEpilepsyTeam Member

Yes. I have a RTL cavernoma. My epileptologist said it's most likely congenital. The MRI showed signs that it had leaked a little blood, and the resulting scarring is the likely focal point of my seizures. It waited many years before it caused problems, I was diagnosed ay age 62. It ended my "devil-may-care" lifestyle.

6 days ago
A MyEpilepsyTeam Member

Not sure if this is pertinent, but my Epileptologist said a person can have microscopic lesions in the brain that cause seizures.

January 24
A MyEpilepsyTeam Member

Yes, both cerebral cavernomas (also called cavernous malformations) and developmental venous anomalies (DVAs) can increase the risk of developing epilepsy. According to the search results, around 40-60% of people with brain tumors and 7-46% of people with encephalitis develop epilepsy. Since cerebral cavernomas and DVAs can Show Full Answer

Yes, both cerebral cavernomas (also called cavernous malformations) and developmental venous anomalies (DVAs) can increase the risk of developing epilepsy. According to the search results, around 40-60% of people with brain tumors and 7-46% of people with encephalitis develop epilepsy. Since cerebral cavernomas and DVAs can also cause structural and vascular changes in the brain, they may disrupt normal electrical signaling and trigger seizures. Having both a cerebral cavernoma and a DVA likely further increases your risk. Managing epilepsy alongside these conditions can be challenging, so it's important to work closely with your doctor and healthcare team. Let them know about any new or worsening symptoms so they can help optimize your treatment plan.

January 22
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