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Who Hids Their Own Epilespy?
All my life, since i was diagosed with it, i try hide it especially in front of strangers. I dont want my frriends or family to worry. And they REALLY dont understand it either. My dog helps me through it all every day. My dogs are the reason why i get up in the morning.
I think a little bit about it, but not much as anymore when I first was diagnosed with, I didn't know what I had, but after the years of having them I know what I am dealing with, I don't worry about… read more
What Do You Do When You Miss A Dose Of Your Medication?
If you miss your morning dose do you take it when you realise or do you wait until your next dose is due?
I am getting my Epidiolex by FedEx next day Air. Once I had run out and should have taken it at 9 AM. I got it later, say 10:30. The Doctor told me to take it later that evening as well.
Medication And Eyesight
Is there any particular epilepsy medication that damages your eyesight? I wear glasses but I am finding all the medication I am on is making my vision worse. I'm not sure which drug is causing the problem but when I go to my opticians I'm going to ask them.
Phone Number
If anyone wants or need to talk I will give you my phone number. I’m always here for everyone.
I don't have a problem giving my phone number to anyone who needs or wants to talk. Just ask and I will send it to you!!
Who Lives Their Life In Fear Because Of Their Epilespy?
I am in consant fear of when i will have a seizure. I dont know when it could happen. Its affecting my everyday life always trying not to think about it too. Always playing on my mind.
I read stories like this and my heart just breaks! FOR ME! when I stopped living in fear of episodes is when I stopped having them! I don't allow my husband or my coworkers to be "overly cautious"… read more
Why Is The Media Saying That Covid-19 Fills Up The ICU Rooms?
When I had the first Temporal Lobe Surgery and was finished at 12 midnight, it happened on August 2006. ICU rooms were filled, no Covid-19 but didn't leave one open for Me. I wound up in general recovery.
Simple. They lied
Is Anyone Else Cursed With Being Empathetic Along With Epilepsy Or Seizure Disorder?
In my case, this means that it is painful for me to hear about suffering of people and animals throughout the world. Thus, this year has been extra tough because of Covid-19. And my stress level is getting worse because the holiday season in late fall and into the winter means more people will get Covid-19 because too many people refuse to change from their annual holiday plans.
Friday evening I had 2 hours of aura barrage. And 6:30 AM today, I had a full seizure. For whatever reason, God… read more
JohnDufrense
Thank YOU one of my dearest friends
Having been dealing with EPILEPSY for sixty years.
And I feel I can help others who have it or who have just been diagnosed..
I was Diagnosed in… read more
Why Does No One Look At Natural Medicine?
I've been involved in natural/herbal/Eastern medicine for epilepsy (and other issues) for 29 years after giving "modern medicine" 41 out of 48 years of my life with hardly any benefit and more side effects than I could take anymore. It was out of desperation that I tried the "snake oil" (as 99.9% of the medical community still refers to it as) approach, and let me tell you, it was the BEST thing I ever did for myself! Within less than 2 weeks I noticed a HUGE improvement in my seizures taking… read more
Use nothing but. After doctor did me wrong
I Take [[treatment:lamictal:5508b7fb6bcd61548000025f]] And I Read It Can Cause Problems With Your Vision I Have Doubts Vision When I Look To The Right
If I go off the meds will my vision get better
Has Anyone Tried Safe And Effective Seizure Detection System ?
I have heard of this system that help people with seizure alert others when sleeping for those who will help us in need . Also Is the safe and effective seizure detection system very helpful and easy to use?
I received my ematica watch yesteday. I right handed and when i was washing dishes last night my right hand was moving so much it thought i was having a seizure and contacted my contacts. I now… read more
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