Questions & Answers

I wanted to make a daily trigger tracker app to find more of my triggers. I want something that can be edited so that i can make it match my own possible trigger and of course how much sleep i get and stress. Does anyone know how to make an app and would be able to help me create one? I made a book but that took forever and i had to write out the whole journal and I'll have to make another in 3 months. If i make an app it can last and i want to make one that Google play can have for others to… read more

If you do have it do not take perempanel/fycompa. My doctor knew i was on depression medicine and still put me on it. I ended having 15 seizures in a 12 hour period, throwing punches at people and breaking doors or anything that was in my way. They had to bring cops in make sure it was safe for the EMTs to come in. When i got to the hospital i had my last seizure and it took 4 doses of ativan and 7 people, 45 minutes to get me to stop.

Everyday, i am afriad when a seizure might happen, if i can control well or not amd have a big one. It makes me afriad to do anything else afterwards in case another will happen. I do have little pre-warning signs to tell me its coming but i panic and get scared. I do always feel it my fault too when the seizure happened.

Does anyone else feel a seizure come on, and then start to self talk to try and stop the seizure? I find when i feel a seizure coming on, i’ll get into a safe position as quick as possible, and then i’ll start to try and tell myself to not go into it, and that im okay..and then the next thing i know im coming back to, and i feel like absolute crap :( usually really emotional and crying too

O.k.I was up at 5am and up and active all day on my feet and walking around. No naps or sleeping also doing laundry while cleaning the house and I was fixing the hot water heater also.So after describing all my activities of the day my question is am wondering what happened if I had small cluster sezuires or what could I blackout on my feet seeing have chunks of no memory at all of what happened during the day. My memory of the day was I woke up at 5 and the next thing I knew it was 4 in the… read more

I can remember events that I have been to or been part of but I do not remember things that happened while I was there just that I was there. I pretend like I remember what happened when talking to my friends and family does anybody else have this problem

Drug resistancy

Unless someone tells me they heard or saw me have seizures I have no idea why I feel like crap. I don't know why it it is hard to read or why I have headaches. I live alone. I have 3 types of seizures which I think started in 2009 when someone saw me have a seizure in the parking lot of the grocery store. I'm 63 and my son is the only one who helps me. My mother and siblings won't talk to me. I still can't tell any doctor if I have had seizures between visits. With the tonic-clonic I can… read more

I'm a retired speech & language therapist ( I worked for several years with patients who had neurological conditions) I'm on 4 different meds & last October they introduced modified release Epilim When I have my clusters of partials I always have communication problems but I'm now finding some phrases are altered ev ' switch on my tablet " becomes twitch on my sablet " : " can you make dinner" becomes' Dan you make kinner' The sounds are correct but placed on the wrong words I'm aware this… read more

Ok.. so i stopped having breathing/seizing issues in my sleep but maybe i just dont know if im seizing.. ive been having nightmares again but waking up having panick attacks too like im stuck in them but i have no clue if its real untill i can focus on the real world around me waking up seeing its not real im alone and safe. I end up starting my day to be productive and get needed things done and when i sit down to eat or close my eyes i pass out/fall asleep suddenly. This ruins my needed tasks… read more