@A MyEpilepsyTeam Member Ouch! Absolutely wise on the information to carry. I started that myself in 2003, though it was created by a friend and co-worker after on the day I was back from vacation (during which Tegretol ran out and the pharmacist's error version (high blood pressure medicine) took over). I ended up having to go get a card filled out to go to the MGH walk-in clinic or ER. The problem is that I was out of it, and having trouble speaking (little did I know but my potassium level was tanking). A volunteer (with English as her second language) ignored the first name of my PCP from the back of my insurance card and thus put the wrong name into the system for my PCP. I got sent to a lower level ER (all younger resident doctors) because I mumbled to the doctor in the walk-in clinic about medication - no lab in the walk-in clinic to examine my blood so I had been sent to that ER. The wrong PCP and my neurologist on vacation meant that the resident doctors treating me had nothing to work with besides what I was able to tell them (after they put potassium in me via an IV), thus the one who had me for most of the time pull the curtain for privacy, and she asked me if I had tried to kill myself. (The rest of the drama is in my story).
The good news that resulted from this error with me (and who knows how many others - I had met at least a dozen who went to the same doctor's complex as me) is that eventually at least in the USA (is this true in the rest of the world?), they now show the shape and have a description of the pill on the side of the bottle/information form attached to the bag the bottle comes in.

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A MyEpile...

I have the same situations. However I am married. But my wife is gone during the day at work so I am alone at home during the day. I have no contact with my family. So like you if I have a seizure during the day, I couldn't tell how long it lasted or when it happened.

VeroniqueMatthews:
I'm so sorry that you don't have the support of your Family.
They should be ashamed of themselves.
YOU should be able to tell your Doctor about ANYTHING !!!
Sounds like it's time for a Doctor who will LISTEN TO YOU !!!
YOU have every right to ask for a refurrell !!!!
Don't want to ask the doctor~ASK Eilpepsy Society where you live for one.

I have had Chronic Migraines since I was age six.
Mine are all "Weather related" not from anything I eat or drink or from stress
Don't know if they're connected to Epilepsy or not??

99.9% of my seizures (complex partial or full seizures) are impaired. Most of the full seizures now don't even have an aura with them and do not end until I have already gotten up on the floor and moved on. Of course, since I have auras without complex partial seizures, the auras are not helpful for me in knowing I have actually had one. I need a witness. It is especially confusing when I wake up to find I have a bruised side of my body (or something similar). It is only after talking with my sister or one of our parents (the 3 of us live in this sister's house) that I find out that I had fallen backward when I was standing in front of the sink getting ready to brush my teeth and landed on that side as I dropped to the floor. The good news is that my head managed to miss the side and then the base of the toilet in the fall and since my side to the brunt of the fall, my head did not slam into the tiled floor.

@A MyEpilepsyTeam Member Exactly! However, in this case, the renaming of seizures came from the upper-level hierarchy of the medical fields (the ones that I call the 'labelers"). It was actually in a conversation on here back in 2017-2018 I found out that my primary seizures were no longer the simple partial and complex seizures label that they had back since at least 1997. These "labelers" are also the reason why we have "mental illness" or "mental disease" rather disorder, disability, etc. that all of the physical ones are categorized in.

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A MyEpile...

I had my son around me, but now he's moved there. I just recently moved there. long story why. But he was the one I didn't feel funny talking to. I'd say did I have a sezier and he would say yes, don't you remember. So did my fiance, he seen alot I had, and I would ask the same thing and get the same answer. I've had a couple that if nobody was there , I don't know what would have happened, I have Gradmal