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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Do You Notice That Singing Helps You Feel Better?

By A MyEpilepsyTeam Member 66 answers

What's On Your Holiday Wish List That Could Improve Your Life With Epilepsy?

By A MyEpilepsyTeam Member 161 answers

Could You Share Any Dietary Changes And Tips That Have Helped With Epilepsy?

By A MyEpilepsyTeam Member 147 answers

What Epilepsy Symptoms Keep You Up At Night?

By A MyEpilepsyTeam Member 222 answers
12428 questions

Would You Offer Your Story Shared To A Collective Story To Help Others Less Fortunate With Your Chronic Conditions As I Am?

A MyEpilepsyTeam Member asked a question 💭
Lakeville, MA

The key is not any one person's story, but rather pieces of all of the stories of everyone on the site who is willing to agree to donate (not for individual profit) the key events points of your story so that we can get the word out to the world about what are collective stories can do to explain what epilepsy really is. If you realize that sharing your story and offering it as part of the collective story to be shared with the world to help other epileptics who were not lucky enough to find… read more

A MyEpilepsyTeam Member

yes i would be willing to :) both good and some bad... maybe a pic or 2 from way back when

January 29

What Is Your Favorite Story About Your Memory?

A MyEpilepsyTeam Member asked a question 💭
Saint Louis, MO

After searching through every nook, cranny, purse AND drawer, I found my car keys in my unlocked car in my garage. *WHEW* At least I hadn’t inadvertently thrown them in the garbage! Memory Row wow

A MyEpilepsyTeam Member

i can't beleive i'm that clumbsy! it must be the meds or something. i feel like a drunk.

November 2, 2023

What Does A Typical Day Look Like For You Living With Epilepsy?

A MyEpilepsyTeam Member asked a question 💭
San Francisco, CA
A MyEpilepsyTeam Member

There are companies that want people with your skills to work from home. Things will get better 2024! Take care.

December 29, 2023

How Do You Know You Had A Siezure?

A MyEpilepsyTeam Member asked a question 💭
Rolling Meadows, IL

So after reading I've read many say they were out or doing something they had a siezure and kept doing what they were doing. Other than now knowing that aoras don't think I'm spelling correctly, are a siezure I guess..... If not what does everyone mean? They weren't flopping on the floor..... I now that's not the only type but I'm still confused.

Thanks for helping me try to understand. I figure asking here directly would help me more than a million things on the G search engine

Thanks… read more

A MyEpilepsyTeam Member

I have absence seizures. Since I have a Vagus Nerve Stimulator and a Deep Brain Stimulator that both work together there are times when the seizure will go through those leads and the use of the VNSread more

July 9
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Do You Have Problems Connecting To The Links That I Provide For The Up-to-date Information On Epilepsy?

A MyEpilepsyTeam Member asked a question 💭
Lakeville, MA

I thought that I had mentioned in the past (but my memory recall is almost completely useless because of the severe brain damage to my memory, so I cannot be sure), that if you are in another nation besides the USA, and the links to the USA sites that I provide do not work for you, then let me know.

I know how to find the equivalent sites the the US Epilepsy Foundation in many other nations and likewise the government sites in all nations that provide one that is the equivalent of the US… read more

A MyEpilepsyTeam Member

I’m asking because you seem very knowledgeable and I’m going on my 4th Neurologist! At this point I feel like an experimental pig. My last drug was depakote and it was a nightmare! I lost a bunch of… read more

August 17, 2023

Medications

A MyEpilepsyTeam Member asked a question 💭

I seemed to work well with taking Vimpant, but with insurance is was $600 a month. Any idea of how to get it cheaper. I was exercising before [[treatment:Keppra:5508b44d6bcd6155dd0008e5]] and am weepy, felling sorry for my self.

A MyEpilepsyTeam Member

One thing people can do is get their medication from a hospitals pharmacy.

August 23
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Has Anyone Had Embarrassing Things Happen When They Had A Seizure?

A MyEpilepsyTeam Member asked a question 💭
Richmond, VA

Has anyone been either at home or in public and had a seizure that was embarrassing?

A MyEpilepsyTeam Member

My most embarrassing moment was when I was in the student commons while in college and eating breakfast. I got the usual gawking. I knew what it meant for my dating life. Fortunately, there are… read more

May 15

Just A Silly Question

A MyEpilepsyTeam Member asked a question 💭
Pittsboro, NC

Anybody else out there like Pop-Tarts?

A MyEpilepsyTeam Member

Like cinnamon pop tarts

October 8

Does Anybody Else Seem To Have More Seizures When You Try Taking On A New Task?

A MyEpilepsyTeam Member asked a question 💭
Kansas City, KS

People have given me instructions on how to do new things. I seem to have several seizures when trying the new project out.

A MyEpilepsyTeam Member

I understand, same thing is happening to me

September 20

Epilepsy Can Have Effect On Your Memory, What Annoys You The Most When You Forget It?

A MyEpilepsyTeam Member asked a question 💭
Deal, UK

When I have seizures I lose my memory, what annoys me is pin numbers and passwords for accounts etc.

A MyEpilepsyTeam Member

I do that as well, plus I put things away for safety reasons, then when I want it I forget where I put it.

June 12
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