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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What's A Common Misconception About Epilepsy?

By A MyEpilepsyTeam Member 304 answers

Are You Frustrated With Finding Effective Treatments For Epilepsy?

By A MyEpilepsyTeam Member 168 answers

How Does The Cold Affect Your Epilepsy?

By A MyEpilepsyTeam Member 184 answers

What’s Your Trick For Enjoying Holiday Treats And Staying On Track? 🎃

By A MyEpilepsyTeam Member 72 answers
12502 questions

Pregnancy?

A MyEpilepsyTeam Member asked a question 💭
Hermitage, TN

Not pregnant but wondering for the ladies that have kids and have epilepsy, how does or did the pregnancy effect your epilepsy?

A MyEpilepsyTeam Member

I was lucky cause I had surgery in October & got pregnant in December. I was on the same medication & had no problems through my pregnancy or having kids

May 17, 2020

Can Epilepsy Patient Can Ride Roller Coaster? Lo I'm Afraid To Ride It Cause The Height

A MyEpilepsyTeam Member asked a question 💭
Orlando, FL
A MyEpilepsyTeam Member

I have not had a problem

January 30

Seizure Medication

A MyEpilepsyTeam Member asked a question 💭
Jackson, MS

Does Topamax work for you keeping seizures away?

A MyEpilepsyTeam Member

Don’t take Topamax. Vimpat was bad enough & too much for my mind to handle. The side effects I had on Topamax was loss of appetite, lost weight, confused all the time, couldn’t think straight… read more

June 4, 2021

Embrace Epilepsy Monitor Watch

A MyEpilepsyTeam Member asked a question 💭
Hornchurch, UK

I was wondering if any of you have smartwatches that can detect epileptic attacks?

I saw the embrace watch and wondered if it was the best tool out there and if it had any other smartwatch features?

https://www.empatica.com/product-embrace

A MyEpilepsyTeam Member

Me either:.(

October 16, 2019

Have Any Of You Had A Doctor Who Really Cared Or Just Doctors Who Were In It For The Money

A MyEpilepsyTeam Member asked a question 💭
Spring Hill, FL

personality of neurologist that have had through the years, their attitude and care for the patient or a neurologist that was just a 'fill the perscription and don't ask questions' doctor.

A MyEpilepsyTeam Member

I have one who is really caring and always available at any time. He has become a big brother and a confidant. I am so grateful for his time, care and effort. I’m protective of our relationship; but… read more

August 2, 2021

Could Taking Too Many Different Meds Be Increasing The Frequency Of Our Seizures?

A MyEpilepsyTeam Member asked a question 💭
Plano, TX

Hi everyone!

I'm taking 4 different meds in the morning, three different meds in the afternoon, and 4 in the evening. Has anyone ever been suspicious that so many different meds may actually be increasing our seizure frequency? I've been doing some research and certain siezure meds in conjunction with other anti-convulsants may actually cause seizures. Do your neurologsts just keep adding new meds to your regiment or does he ween you off one while adding another?

A MyEpilepsyTeam Member

Paul, I have seen the epilepsy specialist, neuro surgeon, and the neurologist. Despite the fancy title-the epilepsy specialist was the least informed of the bunch. When the epilepsy specialist… read more

July 13, 2017

Does Any One Else With Temporal Lobe Epilepsy Have Mental Health Issues?

A MyEpilepsyTeam Member asked a question 💭
Bradford, UK
A MyEpilepsyTeam Member

I’ve had depression longer. Then started having panic attacks. Afterwards, I found out that I had a benign brain tumor that caused my absence seizures. I had it removed

April 21, 2022

Meet & Greet

A MyEpilepsyTeam Member asked a question 💭
Manchester, UK

Hi guys

I'm kinds still relatively new to epilepsy and wasn't offered much support from the hospital or anywhere. I was just wondering if anyone in Manchester area knows of a group that meets up or would like to meet up for a chat sometime to help each other?? Message below if you know anywhere ongoing for a catch up in person.

Much appreciated thanks

A MyEpilepsyTeam Member

It's a rotten deck of cards but in reality, who gets dealt a good hand it's just a part of life. I seizure daily, i don't think it's going to change. Some days it's not much fun but with out the down… read more

September 26, 2017

Carbatrol

A MyEpilepsyTeam Member asked a question 💭
Oxford, UK

I've been put up to 1200 mg per day of tegretol retard. This is the maximum dose and seems very high - has anyone else been on such a high dose and did you suffer any side effects?

A MyEpilepsyTeam Member

when dr put me on Brand tegretol mg 200 I was taking 5 a day 2 in morning 3 night then it made me blury so called dr told him then he drop it down to one 400mg in morning and one at night 12 hrs apart… read more

June 1, 2023

How To Stop A Seizure

A MyEpilepsyTeam Member asked a question 💭
Richmond, VA

I here people say when they feel a seizure coming that take their medication (with aura's or seizure dogs). I take 1- 1000mg keppra in the morning and 2 at night but sometimes I feel them coming and can't stop them. My question is what type of medication is taken to stop them at that moment.

A MyEpilepsyTeam Member

Adavan

May 6, 2019
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