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Cenobamate/Ontozry
Has anyone here started the above medication? How have you felt
No I don't have a special diet
How Do Others With Photosensitive Epilepsy Deal With Flashing Lights When Out In The Public?
Recently an outdoor restroom facility when up in my neighborhood and in each private stall are strobe lights. Now I used the restrooms without knowing this. I don't anymore because I afraid lights will go off when I am using the restoom and that would be a total nightmare. This makes me feel like I am discriminated against and where am I suppose to go to the bathroom?
Kris, even though you probably know that the people at the staff meeting didn't mean to hurt, insult or offend you. That probably didn't make you feel very good having to go to a darker room and be… read more
Aspire 106 Vagus Nerve Stimulator.
One thing I cannot find anywhere or calculate from clinical trials is the number of "Auto-Stims" one can expect every day (It's dependent on threshold and duty cycle settings). It would be hugely helpful for me if anyone here has been using one and knows their daily average? Mine's been in for over 4 years and is due a battery replacement. I've not seen a reduction. Would love to hear from other users how they feel the VNS 106 has helped them in their way of life.
The Aspire 106 vagus nerve stimulator works by sending small electrical pulses to the vagus nerve, which can help reduce seizure frequency. According to one MyEpilepsyTeam member's experience, their… read more
I’m Just Curious As To What Talents, Skills And Hobbies You Have? Maybe I’m Biased But I Think People With Epilepsy Are Very Creative.
For myself, I love to write. Read ( although I don’t as much as I used to) I love music and movies. I love to craft as well. 🌻
Hi Katie West, You ask my hobbies, talents, and skills. My hobbies are playing games, watching movies, helping anyone I can, holding conversations and reading on this site. Telling what I believe are… read more
Can An Aura Happen A Few Days Before A Seizure?
A few days ago I had an aura and took my rescue meds. yesterday I went down out of the blue.
I'm Wondering If The Heat Effects Anybody Else. When It Gets Really Hot I Go Into Seizures.
Excessive heat will cause me to have seizures. Like today it was 87 plus high humidity. I had 2 seizures today. Was wondering if heat effects anyone else.
Not for me! The warmer the better! Higher altitude is what’s hard for me I live where the altitude is 6,200 feet. Stress is my biggest trigger.
Are Any Of You Afraid To Sleep In The Dark, Especially After Having A Seizure?
It's embarrassing to say since I'll be 19 in October but I have to have some type of night light on and some type of music playing or a tv show playing when I try to fall asleep I've always been afraid of the dark since I was a little kid. And After having seizures, it just made it worse. Cause my anxiety raises especially after i have seizures.
I have to have the light on when I have my partial seizures. I feel jumpy and paranoid. So having the light on helps greatly. I also have a stuffed red panda that I cuddle every night. There is no… read more
I Had Bad Reactions To Covid Vaccines. I Had 3 Then Stopped. I Refuse To Have Any More. Bad Seizures Within 24 Hours!
Tonic clonic seizures. 1st on bathroom floor. 2nd kitchen with kettle of boiling water on my arm and 3 hours out of it before I came to and 3rd on living room for 3 hours. When I did wake up on my living room floor I’d kicked over my coffee table. My seizures had been quite well controlled for over a year. My epilepsy consultant said it wasn’t Covid vaccination that caused it. Later I was told he was telling people that so they had the vaccinations. It took over 2 years to get stabilised!
I get the Covid and Influenza shots usually about mid-October.
Every person is different.
Do You Belong To An In-person Social/support Group For Epileptics?
Look up TTWP. Turning The World Purple. Its a nonprofit epilepsy group run by someone I know name Michelle Cole Hernandez. She lives in Louisiana.
Dave7 Are You AI?
You ask alot of questions that are very helpful for people. Some seem to general. Are you collecting information for a project or book? ✍️
You are welcome and hang in there and try to stay pos, I do and so can you.
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