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I’m Not Able To Go To My Nieces Wedding Which Is About 3 Miles Away Cause I’m Taking Care Of My Mom That Week. It’s Sad.
She has hallucinations I’m to go there 2 weeks out of the month. Caregivers are expensive.
I’m sure I’ll get to
So With My Podcast “Let’s Talk Disability?”
Please can people comment what they would like me to speak about or give my opinion on. That’d be a massive help to me. Thanks and i hope everyone is doing well and staying positive.
Hi Aaron, I tried going on Apple Podcasts and couldn’t find you. What do I type in my search bar to get your podcasts. I would love to give you some ideas but I don’t want to repeat what you’ve… read more
How Is The Arctic Blast Affecting You Today?
Toasty warm here. 72 degrees in my home! Snow here in the Midwest. NOT San Diego lol 🤩
It’s been cold here in Boston, MA. I only go into the office twice a week. Wish they required it more because during this time I lock myself in the house and don’t move much. Even though if I forced… read more
What Is Your Favorite Memory Of Thanksgiving 2023?
My son and his wife had me over for dinner! I brought a few gifts.
just being with family my wife :)
Are There Any Friends Who Have Endured The Challenges Of Being An Epileptic Single Parent To Young Children With No Local Support System?
A new friend of mine on here (Dawn) shared this part of her story with me and is looking for help from those of you who know: "Hi i am raising my son 2 kids and i can't handle them because of my Epilepsy i get confused on what i want to do.and i really don't tired of being stress."
Please give her some advice!
I feel for you, no1 should be in that position of being the only parent. Of course if due to the death of the other parent had died. Thankfully was not in that position and when I was divorced from my… read more
Has Your Epilepsy Affected Your Balance?
You could be walking, standing, or trying to get up and it feels like your going to fall.
I am not sure. I also have arthritis and still need to lost about 60 pounds which I am doing. Once I get my eyes fixed I will be able to walk outside and not worry about falling due to not seeing… read more
Do You Have A Medical Bracelet?
Does your medical bracelet state that you have seizure disorders?
I had one in the past. What I remember is You are given a name written on the back with the number to call. After or when a person is having a problem The person that answers the calls the number and… read more
How To Improve Your Memory Recall?
In the case of most of us (unless those who suffered brain damage that specifically damage to long-term memory in the inner brain with the hippocampus and memory central command) or are suffering from dementia (easier to get a test now that can show if you have early stages or soon will have do to recent research published earlier this year), then all of your memories (nothing that occurs during a seizure except those seizures like the Simple Partial Seizures that you are completely aware… read more
@A MyEpilepsyTeam Member With regards to the side effects of the medications, the doctors who prescribe them know all of the major side effects, but there are rare side effects that are dangerous to… read more
Which Way Do You Prefer To See Your Neurologist?
Do you prefer to be by yourself or have others with you? Sometimes I feel better by myself and at other points of time don't mind my mom.
I go to an appointment with my parents, but I spend some time with my Dr. alone first. I tell him things and ask questions. Then I tell him to keep what we said private. I don’t want my parents… read more
Waking In Hospital
My first tonic colonic sezure was bad bite my tongue stopped breathing would not believe it finish work on the Thursday 2020 went home had tea that s all I remember woke up Saturday 2020 had no clue were or how I got there then doctor gave me a letter and said you got epilepsy can't drive or go back in to construction that was my lowest point of my Life I even though ending it or wish I had COVID knock me off my feet but 3 years on I got off my ass I learnt about epilepsy stop feeling sorry for… read more
I'm so glad my partner was there for my worst tonic clonic 😂 he made sure I was clothed. Lol. I remember kissing him goodbye when he left to go buy a bucket truck, then nothing else until 9 days… read more
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