Questions & Answers

I can always tell when I have a seizure because it feels like I was rubbing my eyes on the carpet. It normally feels like this all day. Does this happen to anyone else? Does anyone know why this happens?

I noticed with myself, after a high stressful day , don’t always seizure during the high spike of the stress. It will happen when I start to sit and relax after the event.

If like me you take a lot of tablets throughout the day and you sometimes forget a good app to use is called Medisafe. Once you have listed your tablets it will remind you when to take them.

I have been on Tegretol for 17 years since 2003 a year after my diagnosis with epilepsy, I've noticed over the years that I've had more side effects and seizures than I once did when I first was put on it, my doctors have never changed it. Has anyone else experienced that? Thanks in advance :)

Do you feel uncomfortable embarrassed strange. Do people seem to look at you strange while talking. Do you have trouble with eye contact. Feel stupid when walking away after a conversation with someone

I've got complex partial seizures with identified abnormality in my temporal lobe. Seizures are focal so my neurologist said surgery is an option I should consider, but I'm pretty scared and not sure it is worth it. My seizures aren't very bad and I could still lead a mostly-normal life but I plan to become a doctor and with sleep deprivation being a major trigger for me it may prevent me from pursuing my desire to work in a hospital (which means long hours). Im not sure about the process of… read more

Hey team mates I'm stumped I will be starting a live chat on fb soon for epilepsy, weight loss or anxiety I help so many folks I'm having a hard time keeping up with my health issues so I thought this may be a good way to get involved with people who need or want my help. But I need a name for the group anyone have a ideas?

I've just explored the site a little more. I came across the epilepsy association medication list and found diazepam rectal gel listed but no intranasal midazolam?? I realise the majority of people here aren't Australians, so perhaps it's something not used often overseas
I still occasionally have a very large grand mal that requires medication to bring me around, but I was put onto using intranasal midazolam years ago
Prior to the midazolam all my partner could use during a large grand mal… read more

After my VEEG, the specialist has advised me to see a psychologist as I'm apparently not having as many seizures as we thought. He believes they are anxiety related. However my seizures feel just the same? Today, I've had an anxiety attack/seizure practically all day and worrying about something personal.