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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Could You Share Any Dietary Changes And Tips That Have Helped With Epilepsy?

By A MyEpilepsyTeam Member 146 answers

Are You Frustrated With Finding Effective Treatments For Epilepsy?

By A MyEpilepsyTeam Member 166 answers

What Are Your Top Tips For Dealing With Epilepsy In The Heat?

By A MyEpilepsyTeam Member 130 answers

Anybody Have Trouble With Remembering Instructions, Directions Or List Of Things To Do More Than Three? Does It Make You Frustrated?

By A MyEpilepsyTeam Member 90 answers
12369 questions

Did Everyone See This Posting About When And Why Seizures Were Renamed?

A MyEpilepsyTeam Member asked a question 💭
Lakeville, MA

https://www.myepilepsyteam.com/resources/why-di...

A MyEpilepsyTeam Member

No but now I keep hearing I am having tonic-clonic seizures. I guess they have learned some much about episodes they needed new definitions for all different versions

November 22, 2023

Is It Just Me Or Do Others Feel Their Spirits Asking Them Questions When You Are Coming Out Of Seizures?

A MyEpilepsyTeam Member asked a question 💭
Caldwell, ID

I've been having seizures since Tuesday. I feel like I've got 3 of my past life are asking me how things were created in this world and how words were created for each thing.

A MyEpilepsyTeam Member

Yea that's a tough one explaining to people. My first "out of body experience" was when I was 9. My mom would ask the doctors because I was so little explaining it sounded crazy. After mild seizures I… read more

December 19, 2023

Achievements Software

A MyEpilepsyTeam Member asked a question 💭
Newcastle upon Tyne, UK

As I get older and the worse my memory gets as a result of my epilepsy and medication I have realized I am forgetting the things I have achieved. Because of this I have bought an Achievements Journal from Amazon which can help me record things. So when I am depressed I can read it and it picks me up. My question is does anyone know of any software or apps that does something similar?

A MyEpilepsyTeam Member

Memory problems are an unfortunate norm for epilepsy/seizure disorders because our brains are literally having short circuits with each seizure. However, memory recall is further complicated because… read more

March 25, 2020

Achievements

A MyEpilepsyTeam Member asked a question 💭
Newcastle upon Tyne, UK

(Not including those who have had families) is there anything in your lives you are proud of or have achieved? So when you have a bad day with your epilepsy you can think of that achievement and it lifts your spirit?

A MyEpilepsyTeam Member

One thing I can truly say that I am proud of having is my Bachelor’s degree 📜. I received it from the University of Massachusetts that is in Amherst Massachusetts. I was teased so much by the people… read more

April 13, 2023

What Are Some Side Affects From Keppra?

A MyEpilepsyTeam Member asked a question 💭

Anyone heard of Keppra rage?

A MyEpilepsyTeam Member

Yes

June 17

Can't Handle More Than One Thing At A Time?

A MyEpilepsyTeam Member asked a question 💭
Ambrose, GA

I know everyone else has this same issue. But yesterday at work, I was trying to handle 2 different things at one time, Basically filling in for our manager. He usually handles unexpected things like the one I was trying to do. He was coaching me over the phone. He has been filling in for another branch that has lost their manager. So he was not here. He was telling me to hunt this, hunt that. I couldn't find things and I could tell it was frustrating him, then in turn started to frustrate… read more

A MyEpilepsyTeam Member

Linda if those people wanna deny this crucial information. That's important too your health, then say f*** you to them. And those aren't the kind of people you need as friends.

May 17, 2019

After A Small, Mild Or Even Big Seizure Does Anyone Else Feel Depressed?

A MyEpilepsyTeam Member asked a question 💭
Thomasboro, IL

After reading comments on a thread I was seeing that a lot of people experience some depression after seizures. Depression is something I've delt with most of my life. Things will be going good, seizures won't be bad, relationships are doing great, but then I have a mild seizure that puts me down for days or even a few weeks straight. I call the after effects of a seizure a 'hang over' seizure feeling. My body is sore, my head hurts so much, it can be hard to do normal daily tasks, but something… read more

A MyEpilepsyTeam Member

I just feel a little annoyed and fed up with my condition

December 25, 2023

Weight Gain And More Gain And More....

A MyEpilepsyTeam Member asked a question 💭
Davis, CA

Hello everyone! I know there are many posts like this one, but I still wanted to post my experience and see if anyone has advice or stories to share. My weight has fluctuated here and there, in the last few years. But I have gained over 20 pounds in the past 6 months- most of it in the last 3-4. Only thing I know has changed during these months, is that my Lamictal dose has been steadily increased every few weeks. I am now on 225 mg twice a day. I've been on Topamax and I never saw weight loss… read more

A MyEpilepsyTeam Member

I am the same , I am on Lamictal 200 mg. 2 times a day

May 1, 2021

Does Struggle With Sleep, From Insomnia Or You Just Can't Stop Your Head Running A Thousand Miles An Hour , Full Of Thoughts ?

A MyEpilepsyTeam Member asked a question 💭
Hewitt, MN
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member... Great to hear!

March 19, 2019

Who Have You Told (besides Family Members) That You Have Epilepsy Or Seizure Disorder? How Did They React?

A MyEpilepsyTeam Member asked a question 💭
Lakeville, MA

When I tell someone new that I have epilepsy and very unreliable memory recall (as a result of the cumulative side effects of all of the anticonvulsants and some other meds), I try to educate them about not only the range of seizures that I have but also how to react and what to do (and not to do) when witnessing someone having a seizure.

A MyEpilepsyTeam Member

A lot of times when I do tell someone I will get either “you don’t look like you do” or “do you have it all the time?”

December 27, 2023
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