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What Do You Do For Work?
It seems as I get older the harder the seizures are getting for me the rest of that day,night and the next day and it's hard for me to call off when I have a seizure even if I feel terrible because I'm the only person who knows how to do my job, working in medical I thought they'd be more flexible with me but there not so now I'm thinking about looking for one that can be more flexible with me. What does everyone else do that is flexible with their epilepsy and willing to work with them?
The Focal Onset Impaired Awareness Seizures (complex partial seizures) can be so complex and have so many more forms than the common ones listed on any medical site, Epilepsy Foundation, Epilepsy… read more
With Epilepsy, Employment Is So Hard, And You Live A Lonely Life. Would You Consider It Hard To Start A Relationship Being Epileptic?
@A MyEpilepsyTeam Member Nicely done! Was the choice of a waffle because you typically have that as breakfast or just the best visual option you could find?
Importance Of Blood Tests
how often do people take blood tests to check depletion levels that most of the medications cause? especially after increase and change of medications?
I don't really do Blood tests that often and only after decreasing my medication.
Looking For New Stoner Friends. Where You At 😂
Hey looking for some stoner friends. In SoCal and trying to chat/sesh on zoom. Bored on disability with nothing to do but work out and smoke bud all day 😂 🤙
Used a disability lawyer and waited for a while for the case to be dealt with.
Does Anyone Get Work Accommodations?
I'm applying for work accommodations due to my work not wanting to give me off for neurology and psychiatric appointments and am trying to think if there are any other ones that would be worth asking for because I don't want to have to go through this twice. Does anyone else get work accommodations for their epilepsy if so what did you ask for?
Also if you have the education to be a nursing to be used in getting a easy way for you to get that education is located in Johnstown PA. It's a school for disabled. Is very helpful on getting the… read more
I Have Three Questions. Is Anyone On Xcopri? Does Anyone Use Cannabis? Does Anyone Have Dreams Every Night?
I’m on Xcopri, Lacosamide and other Meds. Always have dreams at night.
What Are Some Things That Trigger You Guys To Have Seizures?
My triggers are, the heat, strobe lights, stress, lack of water, lack of food, and really cold weather.
My trigger is propylene glycol. If I touch it I'll have tonic clonic seizures within 4 days it's in everything so impossible to avoid
Tounge Biting
I've bitten my tongue multiple times during a seizure and although it's healed OK it's still really tender. I also seem to bite it on the side every time. What's been your experience?
i bite my tounge, my jaw, my lips.🙏
Epilepsy Care Team
Hey everyone,
So I have been researching how the ESNs work over here in Australia compared to overseas and it turns out that the majority of them work in what's called an Epilepsy care team made up of the ESNs, GP, neurologists and other NPs and specialists. Particularly if you see one in the public system.
Does anyone else see an ESN that operates in a similar way? Also what are the other specialists and NPs that are most likely to be in the Epilepsy care team?
Thank you
Jimi, I think you're making a few assumptions about folks because of the culture they live in. Opinions not facts.
An interesting gentleman's conversation to be sure.🙂
With The Medication We Have To Take, Has Anybody Had Side Effects Affecting Their Sex Drive?
As in not having a craving, or see someone who is very attractive and not get the sensation to want to go meet.
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