Questions & Answers

In your dreams when something scares you, it’s so much more intense than being scared when you’re awake Right!?
That’s how my episodes feel now ridiculously unreal, It’s so frightening and disgusting I don’t know how to describe the feelings that come over me now I almost start crying and freaking out, I’ve never had anything so intense I can’t take this much longer

My wife has sacrificed her career and life to look after me and monitor my seizures. It would be nice if the forum had an area where carers could share questions and worries.

So, I was talking to this woman who I'm basically in a relationship with. I was completely certain that we'd never done a phone call and it had me concerned. She was certain that we had and wondered why I didn't remember. So, looking back in the recent calls on my phone, I saw that we'd done a phone call last month. But, I'd had 2 gran mals the day before that. So I was wondering why I'd completely forgotten about our phone call.

Are you busy Monday 30th July? If you have a free couple of hours, please come along to our Epilepsy coffee and chat group. A casual chat for some support and an opportunity to make some lovely new friends. New visitors every month so you won't be alone. Em x

Dr. Zulfiquar Ahmed
Published on Jun 17, 2017
Even though Seizures and epilepsy are closely related, but often mistaken one for the other. There are key differences between these two medical terms, and understanding them could mean the difference between life and death for those who are affected. The main difference between a seizure and epilepsy is that seizures are a single occurrence while epilepsy is a medical condition.

https://youtu.be/3YEqonu9teg

Recently I have gotten into fitness and I purchased an Apple Watch and a set of Apple AirPods to use at the gym. As of this past Thursday, I was 5.5 months seizure free. On Thursday my Bluetooth AirPods came in the mail and from the second I popped them out of the box I was walking around my house enjoying my new toy! Only to find an hour(ish) later that I was awoken on the floor and my AirPods were tossed from my ears. My parents witnessed the aftermath of one seizure and moments later I had a… read more

Hi, I’ve just switched from Keppra to Brivaracetam. I couldn’t cope with the emotional side effects, all self directed keppra rage, self harm which is been clear from for nearly 20 years, suicidal ideation, it really wasn’t much fun. I’m only three days in to Brivaracetam but I already feel calmer. A bit dizzy and tired but I’m really hoping that’s going to pass once my body gets used to it.

Really just wanted to start a bit of a chat with other people who’ve switched. It’s such a new drug… read more

On epilepsy it says avoid
Alcohol, any artificial sweeteners aspartame
Any food that appears to trigger attacks or may interact with anticonvulsants.
About 1 in 150 or more have some form of epilepsy, recurrent seizures triggered by abnormal electrical impulses in the brain.
Epileptics who also have MIGRAINE headaches that triggered by certain foods often cease to have seizures when the offending food are eliminated from the diet.
Some individuals with diabetes suffer seizures when their… read more

This is a clip from an article in today's Boston Herald: "Researchers at Massachusetts Institute of Technology have created a miniature needle as thin as a strand of hair that can deliver medicine to specific areas of the brain and provide better treatment options to people with neurological conditions like epilepsy and schizophrenia.

“The whole idea here is that instead of treating the entire brain, you can treat small portions of the brain,” MIT engineering professor Michael Cima said. “Right… read more

Would you attend a face to face epilepsy support group? I realize getting there may be a challenge if you don't drive. What if a ride was provided?