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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Which Epilepsy Symptom Surprised You The Most?

By A MyEpilepsyTeam Member 163 answers

What's On Your Holiday Wish List That Could Improve Your Life With Epilepsy?

By A MyEpilepsyTeam Member 158 answers

How Do Beverages With Caffeine Affect Your Epilepsy?

By A MyEpilepsyTeam Member 269 answers

What Are Your Top Tips For Dealing With Epilepsy In The Heat?

By A MyEpilepsyTeam Member 130 answers
12387 questions

Just The Fact That I Have Epilepsy Am I At Risk Of Memory Loss?

A MyEpilepsyTeam Member asked a question 💭

I am a controlled epileptic, and was wondering if my memory would still be at risk for memory loss.

A MyEpilepsyTeam Member

You are at risk at pace of 6-1 to develop Dementia faster than a non-epileptic. Keep that in mind. 💜

March 25

Gut And Brain 🧠

A MyEpilepsyTeam Member asked a question 💭
Pittsboro, NC

Not technically a question about epilepsy, but do you all think the brain and gut are connected?

A MyEpilepsyTeam Member

Did you read the latest article from research published in 2021 by Michigan State University Medical on the breakthrough on understanding the "second brain"? I posted it on my page along with the… read more

November 1, 2023

Is It True That If 5 Meds Haven't Worked For You, The There's A Low Probability That Any Ever Will,?

A MyEpilepsyTeam Member asked a question 💭
Knoxville, TN

I have tried 6 meds and considered vns, which is where I first heard this notion that your chances of finding a med that works even minimally drops to 4% after having tried 5 medications for seizures. My neurologist adamantly
disagreed, but I thought 30% of people with epilepsy were considered intractable.
Thanks friends

A MyEpilepsyTeam Member

I have been taking AED meds since I was age 7 at diagnosis. Some of the older ones made by bones weaker, so I have Osteoperosis. I underwent a lot of tests after not having enough control in my early… read more

January 11
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I Took Dilanin, As Well Ad Many AEDs. I Vaguely Rmember At Least One Being Bad For Gums In The Mouth.

A MyEpilepsyTeam Member asked a question 💭
Stamford, CT

What should I ask/tell my Dentist?

A MyEpilepsyTeam Member

I worked for her many years ago, when her kids were small. She knew my Mom and about my seizures years ago. She said I should come in to get a full Teeth Cleaning 3 times a year, rather than 2.

May 1

Anyone Have Drop Attacks? Don’t Walk On Valconic Rock! Ouch!

A MyEpilepsyTeam Member asked a question 💭
Piedmont, CA
A MyEpilepsyTeam Member

During a seizure I am falling now. Don’t have grand mals.

December 9, 2023 (edited)

Which Form Of Reminder Works Best For You? Paper Or Digital?

A MyEpilepsyTeam Member asked a question 💭
Jersey City, NJ

I've been using my phone calendar to remind me to do stuff. I've been using it for over a year now & it's worked great, but recently there have been glitches in my phone & my reminders keep being removed. I have a bad memory, so I rely on my phone to ensure I don't forget to do something. Last week I set a reminder on my phone to do my homework & it got removed, and as a result, I forgot to do it. There are a lot of little things I'm also forgetting to do because my phone keeps deleting the… read more

A MyEpilepsyTeam Member

I was told when I was in 3rd grade by the official judge at the elementary school that I had no musical talent and wasn't even able to keep with the beat. I would later learn that not being able to… read more

October 17, 2023

Do You All Feel That Our Medications Loses Their Effectiveness After A Few Years?

A MyEpilepsyTeam Member asked a question 💭
Denver, CO

Those of you that have had epilepsy for a long time, how often do you need to change medication? Does one work for quite a few years and then your seizures come back, and you have to try a new med? Is it common for people’s bodies get used to the meds?

A MyEpilepsyTeam Member

I'm sorry to tell you this but be prepared to be taken off a med put on new one, possibly sometimes more than one med. Reason doing so is in search which one or combo will work best for you. I came… read more

March 21
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Balance? Since I Started Having Seizures I Have Issues With My Balance. It’s That A Side Effect Or What?

A MyEpilepsyTeam Member asked a question 💭
WaterValley Ms

I was just wondering

A MyEpilepsyTeam Member

It could be Your gait

May 4

I Have A Question.....can A Person Have More Than One Seizure (multiple)in A Day Or Is That Considered Just One Seizure

A MyEpilepsyTeam Member asked a question 💭
Welland, ON
A MyEpilepsyTeam Member

Since he's been going to Jackson, he is improving, but it's a long, slow process. I would give anything to see Cory seizure free before I croak

October 20, 2023

Good Response To Vimpat?

A MyEpilepsyTeam Member asked a question 💭
Weston, MA

As I get older, I find that carbamazepine has had an effect of many none-epilepsy meds of mine, decreasing their efficacy. I'd like to switch to a different med, and my doctor has recommended Vimpat. I've been reading many comments regarding side effects.

Have any of you who take it had a good experience?

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member, that is good to hear.

August 26
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