Questions & Answers

Do people think there is enough research made and support offered for people with epilepsy and dealing with mental health issues? I understand some people are weary with regards to talking about mental health but I believe its a part of the system that is failing us as people

Please tell me that I am not the only one urging them to tell everyone with Epilepsy/Seizure Disorder about this amazing site.

It has changed my life to come here and make friends who know exactly what it is like to have a seizure. Don't you want everyone to also receive this gift?

I know that a few of my friends have expressed that if that had known before they had their first brain surgery what they know now, then they never would have agreed to it. Who else feels this way? How many feel that the brain surgeries have improved your quality of life?

I am not going into this eventual trip to the seizure center with any intention of agreeing to a brain surgery until there is no other options. I believe because my neurologist is at least in his late 60s, that he is very… read more

Along with the common triggers of tiredness and anxiety. Having more than one orgasm is a trigger for me. I have to limit intercourse and take a long break between each one. Anyone else?

Has anyone experienced epilepsy and seizures with the Coronavirus? How bad does it effect those with epilepsy?

i had severe migraines from puberty until my late 30's when they gradually went away. I still have ocular migraines but those i can live with. in my 50's i had a motorbike accident that i was told was the result of a seizure. (i have never remembered any part of the wreck.) it's quite possible that i had epilepsy before then but was never diagnosed.

Has anyone else been prescribed Ativan? I've noticed it helps tremendously as stress is a huge trigger to my seizures. I noticed it the most at work, it's stressful now and I haven't had a seizure whereas before Ativan I would have. Just wondering if anyone else is taking Ativan as well?

I've been taking Keppra for almost 8 years now and off and on I've experienced unsightly fluid retention in the legs and stomach. I've never thought to associate the two previously but in the warmer months it gets pretty bad.

I was just wondering if anyone else has experienced something similar while taking Keppra or perhaps I just have a predisposition to fluid retention....

If you have experienced it how have you managed it?

Hi everyone would really appreciate any advice on my situation,

My mother had a brain tumor removal 7 years ago and one year after that she had her first seizure. She’s had them on off after that for a while, but they stopped for about the past two years (knock on wood)
Her seizures would be triggered by fatigue or lack of food/glucose.
Has anyone had this similar experience and had a colonoscopy done?
I’m pretty worried about the prep before the procedure because as you know you have to… read more

I am possibly considering brain surgery for my seizures. I've seen people on here that mention they have cognitive issues, I've also noticed that many of these same people have also had brain surgery. For those of you that have had brain surgery, did your cognitive issues happen before or after surgery? As in did you go into surgery and come out the same person? Did you go into surgery and come out with some cognitive losses? Did you have some cognitive loss due to the seizures before surgery… read more