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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone With A Seizure History Had A Colonoscopy? Please Need Some Advice

A MyEpilepsyTeam Member asked a question 💭
Miami, FL

Hi everyone would really appreciate any advice on my situation,

My mother had a brain tumor removal 7 years ago and one year after that she had her first seizure. She’s had them on off after that for a while, but they stopped for about the past two years (knock on wood)
Her seizures would be triggered by fatigue or lack of food/glucose.
Has anyone had this similar experience and had a colonoscopy done?
I’m pretty worried about the prep before the procedure because as you know you have to… read more

January 27, 2020
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A MyEpilepsyTeam Member

I had a scope done. My safe route was staying hydrated and very well rested the day before. Even if that means over the counter sleep aids i would suggest hitting the 11hr sleep if possible

January 27, 2020
A MyEpilepsyTeam Member

I had 2 of them, nothing new under the sun

March 11
A MyEpilepsyTeam Member

Had experience today of Colonoscopy and the way I managed situation saved me from what could have been major internal damage during seizure. I pointed out to nurses and surgeon that even though I take medication to guard against epilepsy, it is not efefctive because all tablets i.e. applied through mouth rely on absorbtion through the gut and this won't be efefctive whilst gut is cleanes for days pre colonoscopy. So prior to event this morning, I shared knowledge with nurses and surgeon. Key was I therefore carry with me Epistatus 10 mg syringe and trained nurses on how to use to release content of syringe between cheek and gum if I indicated aura during colonoscopy. After 20 minutes I had such aura, they used syringe and seizure did not develop. True it was also important that I was happy not to have anaesthesia, because I was wary that if seizure was triggered whilst I was unconscious, it would not have been so easy to intervene. So lesson learnt and I will recommend to UK NHS that they now adopt this approach to situation for patients with same risk.

March 8
A MyEpilepsyTeam Member

I had no problems at all with any aspect of the procedure itself.

January 26
A MyEpilepsyTeam Member

I've had 3, you know nothing about it till they bring you out of it.

January 14

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