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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What Epilepsy Symptoms Keep You Up At Night?

By A MyEpilepsyTeam Member 222 answers

Does Anyone Else Get Depressed Listening To Other Family Members Talk About Their Perfect Happy Lives When You Don’t Have Any Of It?

By A MyEpilepsyTeam Member 82 answers

What’s Your Trick For Enjoying Holiday Treats And Staying On Track? 🎃

By A MyEpilepsyTeam Member 70 answers

What Aspects Of Epilepsy Are You Grateful For And Worried About Lately?

By A MyEpilepsyTeam Member 218 answers
12454 questions

Simple Partal & Auras Whats The Diffence?

A MyEpilepsyTeam Member asked a question 💭
London, UK

I had an aura before I started my shift then I had a migraine straight after is it a simple partial or aura I'm confused

A MyEpilepsyTeam Member

KatMarron, you give a good starting point. The more research someone goes through the better base developed. However, don't believe everything read. This question is difficult to answer because of a… read more

November 24, 2016

What Aura's Do You Experience?

A MyEpilepsyTeam Member asked a question 💭
Derby, UK

Hi all,

I don't write on here much, but I read a lot! I am writing an article for my next paper and I'm going to write about Aura's; I was wondering, what aura's do you experience? I usually base my columns on my own experience, but I know there are sooooo many different experiences for everyone, so I'd like to make it more of a variety. So, what do you feel before a seizure?

Em

A MyEpilepsyTeam Member

I have very fast heartbeats and I feel like I need air to breathe which makes me walk around in circles.

December 20, 2016

Depressed

A MyEpilepsyTeam Member asked a question 💭
eleanor-g-williams@hotmail.co.uk

I had a bad day the other day and I felt depressed and I didn't care about anything. I went to my gp a few months ago to see what it is that makes me feel down. My parents an gp think that it is my hormones but I don't because I have been having these moods since I had the operation early 2015. Personally I think it's some form of depression but I don't know. Could someone please help?

A MyEpilepsyTeam Member

I'd go to your regular dr and talk to them about it. They will probably putu on anti depressants considering the answers to the questions they ask u. Good luck.

January 31, 2019

Has Any One Who Has Been 1 Year Seziure Free Going Back To Drive

A MyEpilepsyTeam Member asked a question 💭
Glasgow, UK

I am nearly a year seziure free and want to no if anyone would start driving again ? Some advice please

A MyEpilepsyTeam Member

If you are really wanting to know if you're seizure free have ur doctor do a test to see, a sleep study test.

March 20, 2020

Does Anybody Experience Extreme Fear As An Aura?

A MyEpilepsyTeam Member asked a question 💭
San Antonio, TX

For most of my life I've been having these episodes that I thought were panic attacks, but I think they may be partial seizures. I had a major attack right before my first tonic clonic three years ago. I'll get extremely nervous and tingling in my stomach. I had another tonic clonic a few weeks ago and when I was coming out of it, I felt the same extreme fear I felt before and after my first tonic clonic (I was asleep so I didn't feel anything before hand, but I woke everybody up because I was… read more

A MyEpilepsyTeam Member

this sounds so much like what I experience. thanks for sharing.

June 10, 2023

How Do You Avoid Stress?

A MyEpilepsyTeam Member asked a question 💭
The Villages, FL

I was voted most stressed out instead of cutest couple senior year of high school (unanimously by 3 english classes).
Yoga is supposed to and it stressed me more since it was not working. how do I turn my brain off? My first bad habit (like a kid asking why) was what if... I could not stop - what if I have a seizure? what if someone sees me? what if no one likes me? - it would make you nuts!!

One of the reasons I love theater is it helps me escape reality!!

A MyEpilepsyTeam Member

Hang in there sweety.

February 29, 2016

Keppra And Gums

A MyEpilepsyTeam Member asked a question 💭
Wellington, NZ

hi my gums are swollen and really sore and lately ive been starting to get problems with my teeth (im needing a root canal and fillings) and ive never had problems before. Ive read that this can be caused by keppra which i started taking a couple of years ago. I dont want to switch meds again unless i have to, its working well to control the seizures and ive been through so many in the past but i would like to keep my teeth. my gums are getting rather painful too. is there anything i can do to… read more

A MyEpilepsyTeam Member

Hi I’m new here but not new to Epilepsy and side effects. I have learned a great deal over the yrs and there are plenty of dos and don’ts to stay healthy. About the tender gums. I experienced that… read more

November 15, 2017

It Hurts

A MyEpilepsyTeam Member asked a question 💭
Manchester, UK

Hiya

Bit of a weird question here but this is mainly for people who are suffering from the partial seizure's Either simple partial or partial complex (and whatever other forms they come in) but have you had a seizure where your face tenses up and you can feel the muscles tense up but it also hurts so much it actually makes you want to cry???

A MyEpilepsyTeam Member

My hole body is sore

February 10, 2016

Headaches

A MyEpilepsyTeam Member asked a question 💭
Waxahachie, TX

I haven't had a seizure in along time but I still get these monster headaches. Anyone know how to make them go away?

A MyEpilepsyTeam Member

When you have a head ache try taking a hot shower the heat moister should take it away, that's what I do when I have a migraine. I also have one of those microwave jell heat packs and that helps to… read more

February 20, 2016

Stay Away From Fycompa. That Medication Is Evil

A MyEpilepsyTeam Member asked a question 💭
Plano, TX

I started taking Fycompa and boy it turns me into a grumpy a-hole. It also makes me so dizzy it feels like I just got off an amusement park ride. I'm talking to my doctor to see if I can stop taking it. But stay away..Worst. Medication. Ever.

A MyEpilepsyTeam Member

I was on Tegretol/ X release for many years It worked well but then my body got used to it .My seizure pattern & frequency had changed anyway . Almost every med has bone/ joint issues as a side effect… read more

June 22, 2020
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