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Does Anyone Have Milder Seizures Instead Of Less Frequent, As Meds Are Increased???
XCopri increasing, and Lamotrigine staying the same dose.
I was increasing XCopri and gradually decreasing Topiramate. I completely dropped Depakote. Now adding Briviac after d/cing Topiramate . My sz are minor now!!!
To The Ones Who Have Had Epilepsy Sense You Were Young - How Was High School With Epilepsy?
Were you open to sharing your health issue or did you hide it?
Back in 1972 at 17 first grand mal was a relief i never knew bout epilepsy, had crazy senses before thought was psychic. Told all friends,teachers who'd never heard of epilepsy before the real reason… read more
I Have To Ask A Question About Something That’s Been Kinda Bugging Me About Selfies On The Internet
Does anyone else have a problem with selfies that are “flipped” so that it looks like you’re looking at a mirror image. My brain just can’t handle it. A mirror image but it’s not me? It gets even worse if normal text is in the shot as well.
just wondering.
The backward selfies bug the bejeebers out of me. I don't think it has a thing to do with seizures, but with one's taste.
Have You Been Told Your Medication Is Out Of Stock?
epilepsytalk.com (another social network) has an article dated 4/13/2024 which addresses the above. Author gives excellent suggestions that may help some of us. I highly recommend reading it. Enjoy!
Never.
If You Have Tonic Clonic Seizures, Would You Want Support From A Foundation Specializing In Them?
There’s the Epilepsy Foundations and its local affiliates, but there’s no association I know of that is solely dedicated to tonic clonic seizures, which I have. If you have them, would you prefer finding support at a non profit specializing in improving the quality of life for those with your kind of epilepsy (a la The Dravet Syndrome Foundation) or one of the larger associations like the Epilepsy Foundation (of America or its local affiliates?
@A MyEpilepsyTeam Member That’s actually a really good question - I don’t know! I do take tonic clonic seizures but live in Scotland and alone. Having a support from a foundation would be great.
Has Anyone Else Used Upwork To Try To Get Some Extra Income To Pay For The Meds / Appointments?
I made an account last week and apparently a new thing is you have to purchase connects in order to apply for job and different jobs require a different amount. I don't understand why I have to pay to apply for freelance jobs...
I am applying in a place in part of state I’m not familiar with. I really respect you! I have been told not to work. I used to work when my sz would be dramatic when I was as over worked. I pray… read more
Does Anyone Suffer With Claustrophobia Or Agoraphobia Since Having Epilepsy?
I am claustrophobic due to how I was treated having epilepsy when it first started, I can't stand being shut in places with no windows, or it could trigger a seizure.
No bab's I'm not clostriphobia or never had that problem. I have now had a few seizures when I was younger in a MRI machine then they had to pull me out. But iv never been clostriphobic. Iv liked it… read more
Why Does Sleep Deprivation Causes Seizures?
Lately the last 2 weeks ive only been getting 5 hours of sleep. Last night only 4 hours. Then today i seize!🙄
It definitely can! Look up the section in resources on sleep…
Have Ladies Or Girls Found That Wearing A Alice Band Or Hair Band Has Effect On Their Epilepsy?
Thanks for your support 🙏
How Is Medicine Working For You, Do You Have Any Side Effects? I Seem To Have Everyone Of Them Especially Memory
How many medications have you tried? How many are you taking? I have literally tried them all and I have a VNS. The 2 I’m currently taking are no longer working and the other ones never did. Do you do anything other than medication that seems to help
We are all guaranteed to have memory struggles between both are Epilepsy and medication’s .
The many other side effect from the medications are different for all of us. What side effect you’re… read more
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