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I’ve Just Started Taking Briviact - Anyone Have Anything Positive To Say About It ?
Does Anyone Take Keppra, Lamotrigine Or Vimpat For Seizures?
I take Keppra.
Anyone Else Have Experience Switching From Long Term Tegretol Usage To Keppra?
I gradually built up Keppra to therapeutic levels over 6 weeks and then started the 6 week withdrawal from my 400mg daily dosage of Tegretol. Have only been totally off Tegretol for 2 weeks but have side effects: tingling skin, muscle weakness (especially in legs), irritability, sleeplessness. Hoping these subside as my body adjusts to its new chemical makeup.
@A MyEpilepsyTeam Member Well as a whole the major ones were dizziness, nausea, shaking and for some reason shortness of breath. Then there is a constant feeling of having a blocked nose a lot of the… read more
Hug And Useful
Just wanted to make a comment. Now I know I am just as guilty of this social media habit as anyone else. But we are in the habit if we are having bad days or good days by just clicking on the hug or useful icons. When really all of us suffering want someone to talk to or just to know that someone is out there listening and will help in whatever way possible. So to my team and everyone worldwide if you want someone to talk to don't be afraid to ask. Turn 2019 into a year where we can be there for… read more
I'm always available on sms or What's App.... Anyone is welcome to make contact.
Does Anyone Else Cry At The Drop Of A Hat When Seizures Are Uncontrolled? I Haven't Gone A Day Without Crying Multiple ×s In Several Weeks.
Born premature. Diagnosed with Epilepsy, Type 2 diabetes, Hypertension, and multiple G.I diagnoses as an adult.
Multiple spinal diagnoses from neck to tailbone, diagnoses beginning when I was a teenager.
Recently weaned myself off of topiramate and keppra.
Disclaimer: I do NOT recommend weaning off meds without your doctor's advice.
@A MyEpilepsyTeam Member I'm sorry friend. I hate that for you. But at least we aren't alone!
What Do You Think About Daylight Savings Time And Should They Keep It Or Get Rid Of It, I Am Neutral About This ❓ But More Below,
I am ok with the day light savings time and I don't see much if any effect of the condition I have with it, I do adjust to the time change and such, but have not noticed a little bit maybe, with the time and my meds, I am not sure if it does,to be honest with, what are your thoughts? Curious, I am ok with it either way, my opinion,
All I have to say is, Pick one
MRI Results...
It's my first MRI since being diagnosed with epilepsy and so far the results say the only thing they caught was I have no defined hippocampus. I have to wait 2 weeks now for the doctor to tell me what that actually means. Just curious if anyone else has ever had results similar to that. thanks
The MRI requires a thorough explanation by you neurologist Kris
There is also a lot of information on line. I inform myself so I can ask good questions
When I have MRIs to help explain any… read more
How Many Best Friends Do You Have In Your Life With, Curious
I did some thinking about this and thought about it, I have had a couple of so called friend of, acquaintances in my opinion, i thought about when I was growing up till now, and couldn't think of any I had, but I don't worry about it I my and my religion and religious practices I have had put together and stand for In my life, I have a daily routine of prayer and bible study I believe in my life with, and will say that the God and the Lord Jesus Christ and the holy Spirit is my answer to this ❓… read more
I've had alot and then I just stop making friends after I've lost 3 of them to murder. It took a toll on me.
I Have A Question.....can A Person Have More Than One Seizure (multiple)in A Day Or Is That Considered Just One Seizure
Since he's been going to Jackson, he is improving, but it's a long, slow process. I would give anything to see Cory seizure free before I croak
I Now Have A Photosensitive Element To The List Of Generalised Epilepsy. Anyone Have Sunglasses Recommendations (UK Based) Please?
Completely unstable epilepsy - again!
Thank you - that’s really helpful.
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