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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anyone With A VNS Ever Experience An Electrical Sensation Through Their Left Shoulder And/or Arm?

A MyEpilepsyTeam Member asked a question 💭
Monroe, LA

Sometimes when I turn my head to the left I can feel vibration in the wire up to my neck where it is connected to the Vagus Nerve. It happens when the battery is not sending a pulse. I also get an electrical sensation in my left shoulder sometimes that can lead down my left arm. It is not painful though.

December 28, 2015
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A MyEpilepsyTeam Member

Yes as far as I know.

January 21, 2016
A MyEpilepsyTeam Member

I am very Happy that your doing fine. Well my husband is trying to get used to his new routine. He is doing very well and so am I. Thank you Denise Take care!

January 21, 2016
A MyEpilepsyTeam Member

Hi sage, my vns goes the same thing when I swipe it, its really quite painful but it has helped with my seizures not stopped them but helped !!

January 14, 2016
A MyEpilepsyTeam Member

Mine has decreased the amount of seizures and also the seizure time. However when I have to activate it, right before the seizure, it is painful to me.

January 13, 2016
A MyEpilepsyTeam Member

It reduced the number of seizures I have. I went from having 3-4 a day to 3-4 a week. They have increased some though because the battery is getting weak, so I have to get it replaced, which should be some time next week.

January 7, 2016

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