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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Had Their Seizures Controlled Completely By Medicine And That Change?

A MyEpilepsyTeam Member asked a question đź’­
Hammonton, NJ

I am aware that skipping pills could lead to seizures.I am on Vimpat and it has worked great but skipping pills could lead to grand mal seizures. I had a grand mal seizure about a month ago due to not taking my medicine correctly. I've been taking my medicine just fine recently but starting to have petit mal seizures (staring for 10/20 seconds). Can medicine just stop working? can epilepsy continue to get worse?

August 15, 2016
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A MyEpilepsyTeam Member

Sorry to hear, and like my dr said, if the medicine is working and got me sz free which is both brand name, he said leave it alone and been sz free 23 yrs now, Your dr should have did same thing leave it alone

December 1, 2017
A MyEpilepsyTeam Member

Hey, don't have grand mal but I have had a 5 year seizure free period as a child. Then after a SEEG I had a 3 years break. This one I don't believe it is thanks to medication, but yes it happens, mostly with children.

August 15, 2016
A MyEpilepsyTeam Member

I'm taking 500mg of Dilantin (Phenytoin) daily. Been seizure free for about 25 years.

December 7, 2019
A MyEpilepsyTeam Member

I get mind threw mail by Express script for 3 yrs now and never had a problem yet, But I do check when bottle arives to make sure XR is in there, just hope never have that problem, if they try od do that I will see a Lawyer if they dont correct it and send me another one, with difference in price

December 4, 2017
A MyEpilepsyTeam Member

I hadn't had a convulsion for over fifty years. However since Express Scripts sends medications by mail there is no way to guarantee that they are sending ALL BRAND as my neurologist requested. Each of my three prescriptions-Brand Name Only-Dispense As Written. However it was at the end of a bottle of pills-so perhaps the Express Script people slipped some Generic Medicine in there-I'm allergic to it and the records say so. Perhaps some people don't want to admit the truth. Linda Concerned

December 3, 2017

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