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Do You Ever Get Treated Differently When People Know You Have Epilepsy?

A MyEpilepsyTeam Member asked a question 💭
Jersey City, NJ

When people find out I have epilepsy, they treat me like a baby/kid. They act like I can't do something myself or it might be dangerous for me. I'm taking a carpentry class & the teacher & the nurse thinks it's dangerous for me to do, but there's nothing I'm interested in.

February 10, 2017
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A MyEpilepsyTeam Member

I lost a lot of friends once they knew and people do treat you different even if they don't mean it sometimes they do. But I think that is due to so little being said and little information past to people regarding what we have

February 25, 2017
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member, same here. I don't tell anyone I have epilepsy. but once they witness me have a seizure, everything turns around.

February 25, 2017
A MyEpilepsyTeam Member

I prefer not telling people anymore, as most people don't know the different types of epilepsy's there are and I feel exhausted explaining to people even if they are friends. In general it gets too confusing for a lot of people to follow, especially since to them hospital visits are associated with physical injury. Some people try to be understanding, but I feel by not letting people know I can allow myself to be treated the same as everyone else free of judgement in this scenario. I do hope one day this changes, and more knowledge on epilepsy is spread to the masses.

February 24, 2017
A MyEpilepsyTeam Member

Yes I have but that’s when I realized those people were not supposed to be in my life because no one should have the ability to judge you. Be confident and accept epilepsy.

March 8
A MyEpilepsyTeam Member

Oh...and the students who are making fun of you should be spoken to very firmly by the teachers and counsellor privately.

June 4, 2017

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