Connect with others who understand.

Sign up Log in
Resources
About MyEpilepsyTeam
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

If I Had Another Seizure, Does That Mean Medical Marijuana Isn't Working?

A MyEpilepsyTeam Member asked a question 💭
New York, NY

I've been taking 600mg Zonisamide and 6mg Fycompa for a few years and still having seizure from time to time. A month ago I added .5 CBD oil in the am and pm. It had been 6 weeks ALL GOOD but then I had another seizure!!! Does that mean the medical marijuana isn't working?

March 16, 2017
•
View reactions
A MyEpilepsyTeam Member

No, no, no! I kid you not. Medical Marijuana (the WHOLE plant. THC/CBD/CBG/ etc) literally saved my life. My seizures were caused by Hepatic Encephalitis and I began using CBD (but make SURE you get some of the good stuff! IF you are in a Legal State/ Province/Country go to a dispensarary or grow your own!) Get a medical marijuana card and eduacate yourself online. I was having Grand Mal seizures and was on huge amounts of Keppra/Gabapentin and another...I started taking SERIOUS amounts of Marijuana (I do Tincture/Edible, canna-caps and the occasional vape) you do NOT have to "smoke" it..in fact, it's recommended you do NOT. Cannacaps and tinctures work far more reliable and can be more precisely dosed. For people having seizures the daily CBD amount we rough need is about 1000 mg per day. Most over the counter "items" just do NOT have the quality amount. Hence going to the dispensary. Talk to the "Budtender" let them know you have Epilepsy, and are looking for strains for seizure control. They are LIFESAVERS! I grow my own "medicine" for my family and a few other military veterans.

September 28, 2023
A MyEpilepsyTeam Member

FYI, revisited by pot doc and he changed things for me. Now he's got me taking 1ml 19:1 cbd:thc oil am and pm, and .25ml thc oil pm (also to help with sleep). Started this past Friday. We'll see if that's more helpful with seizures.

April 5, 2017
A MyEpilepsyTeam Member

As an addendum... I am still on keppra and gabapentin but much, much smaller amounts! I am also off 5 other prescription medications I was on for pain and autoimmune disorder.

September 28, 2023
A MyEpilepsyTeam Member

I also use mmj cbd.. I use pure cbd plant flower I smoke and I use hard candy with cbd and it works great. I live in Michigan.

March 31, 2017
A MyEpilepsyTeam Member

Under my tongue 👅

March 17, 2017

Related content

View All

How Many Of You Think Marijuana Is The Best Option For You After Trying Multiple AED Meditations?

A MyEpilepsyTeam Member asked a question 💭
San Diego, CA

Mysoline

A MyEpilepsyTeam Member asked a question 💭
Ipswich, UK

Have You Tried Medical Marihuana?

A MyEpilepsyTeam Member asked a question 💭
Reading, PA
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in