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Have Got A Teenage Girl With Malonic Teenage Epilepsy And Is Suffering With Anxiety Won't Go Out Has Any One Got Any Advice Please

A MyEpilepsyTeam Member asked a question 💭
Scarborough, UK
August 6, 2017
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A MyEpilepsyTeam Member

hay, i had complex partial seizures. i have been having seizures seance i was 1st or 2nd grade. i am now 31 and still have night times seizures. when i was a teen, i was in the hospital, or the school nurse, almost every day until i was 15, when i had brain surgery. then i went to the hospital every month until i was in my mid 20's. i didn't have a "teen life" because i was living in the hospital.
i was lucky, i had 2 friends that stood by me thru thick and thin. if you have that one friend, you are fine. if not, she can find a pen pal or a online friend but she needs to find it, not you.

August 9, 2017
A MyEpilepsyTeam Member

I'm an eighteen year old- legally an adult but mentally still a kid. I had my first tonic clonic when I was nine, and have focal seizures also. Having to switch into high school after chemo and such was mentally very challenging for me, and I missed months of school because of not just a tonic clonic seizure (my last, thank god) but also my self harm and suicidal ideation. I had some friends, but I mainly bonded with the adults in my life.
My advice would be to not push your daughter. She is going through a part of her life that is called 'formative' for many reasons. Her denying is natural for someone of that age; I wouldn't be surprised if she doesn't take medication all the time either. As a teenager myself, I know that we love our families but we're also trying to find our individual selves. She most likely will listen to a fellow teen, maybe a mentor. You should show your love yet find your boundaries, and these are different for every parent-child relationship. I cannot give specific advice nor can I adjust how your daughter acts, but I wish your family luck. Sorry for the essay!🤷🏻‍♀️

August 14, 2017
A MyEpilepsyTeam Member

Hello elaine yes got her referral to councillor but manage to get her there couple of times then was late one day 15 mins so councillor said have to knock 15 mins off session in front of her so couldn't get her to go again stupid thing to do to her child with low self esteem and anxiety

August 9, 2017
A MyEpilepsyTeam Member

Hi I am 46 but went through my teenage years with it which is difficult for a teenager especially when they feel isolated my personal experience was I felt isolated been young at the time there was no support but just wondering if there are any groups for her to attended with girls her age, I am also wondering if talking to a professional may help her work through her anxiety as I was bad. The thought someone may laugh or tease her will be her main anxiety I would imagine how's things at school for her any support or friends that may help. Just one step at a time it is a huge step and the transition to when harmouns racing around. I had Juvenile mycloinc seizures can't remember the rest of what the paediatrician called it, can the paediatrician not suggest anything for your daughter. It's a difficult age but support groups maybe the best or a chat with a professional on he feelings and working though the anxiety.

August 8, 2017
A MyEpilepsyTeam Member

Hi, I still have epilepsy at 57.. when I was a teenager it was at its very worst because of all the changes ,school stress,hormones etc..I could count on a lot of grand mals small seizures just to mention a few..However I found my friends still wanted my company, I still went to parties,.. I didnt do drugs, or drink as I didnèt want to agrravate my seizures. Didnt matter to my friends in fact they became quite protective of me. Its scary really scary but please tell her to just be with her friends stressing herself out is self defeating and will only make her worse..I am sure she already realizes this. start small have a movie night with friends (good friends.) donèt be afraid to tell them everything and confide in them..go for short hikes or whatever activity she already enjoys continue to do so. she can do anything she puts her mind to..I myself have been in search and rescue, enjoy Taekwondo and kick boxing..was a bit of a nerd when I was a teenager..played grass hockey and skated on the back pond rode bikes..my Mom always encouraged me to do the things any kid would enjoy so I could live as normal as possible as a result I was shocked to learn I couldnt drive (seizures too bad) , dont force her to go out , she is feeling very vurnable right now but encourage her to hang out with friends, let her know she is safe, stronger than she thinks and most importantly very loved by family and her friends. assure her that her friends dont think she is some sort of freak..if they are confused get her to explain to them over snacks sit with her be in a safe enviroment like home...Hope this helps in some small way. Hugs to both of you. Perhaps she would be interested in building her own support group here with kids her own age going through similar things.

August 7, 2017 (edited)

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