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Is It Normal To Be Told The Reason Or Cause Fire A Seizure Can Be Unknown?

A MyEpilepsyTeam Member asked a question 💭
Meadville, PA

Is it normal to be told the reason or cause of a seizure can remain unknown?

April 16, 2018
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A MyEpilepsyTeam Member

They don't know why I have it.
It really bothered me. I spent lots of time trying to come up with reasons by myself.
Doesn't matter.
What matters is I (we) got it, so let's work on fixing it.

April 16, 2018
A MyEpilepsyTeam Member

Thank you so much for sharing. I really appreciate it.

April 20, 2018
A MyEpilepsyTeam Member

For 10 years i was offered 'no reason' for my seizures. Then i had extensive testing and scar tissue was found in my right temporal lobe. My suggestion is to kerp looking, get more MRIs see more doctors, telemetry is a great tool i had that done in Montreal but most brain hospitals will offer it.

April 18, 2018
A MyEpilepsyTeam Member

Yes, the cause of my epilepsy is unkown & my doctor said the biggest cause of mine could be genetics but no one on either side has ever had a seizure so that’s not the cause. I mainly have focal/ complex parial seizures but I’ve had a few seizures where my lips & fingers turn blue so my seizures are changing & they are uncontrolled so having elilepsy is definitely a long process.

April 19, 2018
A MyEpilepsyTeam Member

It is possible. It’s not always easy to understand how we were diagnosed with Epilepsy or what made us seizure out of the blue. Other times they can.

April 19, 2018

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