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Constantly Worried About Having A Seizure, Is That What Makes You Have More Of Them?

A MyEpilepsyTeam Member asked a question 💭
Pittsburgh, PA

Im just very depressed about having seizures that it really got to the point where Im having everyday or every other day. And their very embarrassing after what everyone tells me what I do while having them. What do you guys do to stop the worrying?

October 30, 2020 (edited)
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A MyEpilepsyTeam Member

All of the previous things mentioned are great things to do & I'm trying to do self help cbt as well as some journaling & meditation 😊. They seem to help some but it's not easy to not think about things and allow depression or anxiety to get you down. Guess that's just human nature 😣. I understand the inner struggle (spiritual/emotional) and you're in my prayers 😊

October 30, 2020
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member i had a lot of small to large seizures per day. my go to when i am having partials are laughter or singing. something to take my mind out of my seizures. someone said, 'you have 2 choices... to laugh or to cry. i chose to laugh.' i take it as, seizures are there and you will cry about um or laugh about um.

October 30, 2020
A MyEpilepsyTeam Member

In our situation it seems getting upset snowballs them. Depending how upset depends on number and or duration. That was until meds have changed. I will say that for my daughter they suggested cognative behavior therapy and sensory therapy. It has helped some.

October 30, 2020
A MyEpilepsyTeam Member

It depresses me daily.but I try to do what I can.if meds are not working, talk to dr.it is scary
Relax in bed,put your mind in another world with tv or a book,it hurts when ppl don't understand. I almost died yrs ago,due to neglected by drs.hang in there,n I need a friend who has been there. God bless.

October 30, 2020
A MyEpilepsyTeam Member

Stress is a trigger for me sounds like depression is causing stress is there something you can thing of that brings you joy even as simple as an apple or a friend family member us your team ;) it's hard girl this new epileptic life dont beat yourself up

November 8, 2020

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