@A MyEpilepsyTeam Member , Try going to these websites. I found a list of support groups with this first one I have listed & on the other site you might have to call or e-mail them to see if they offer any support groups or activities cause I couldn’t find anything. In the United States they offer a 24/7 telephone number for you to call if you ever need to talk but I couldn’t find anything like that on your websites but only you would know if you would be able to dial an 800 number in the United States & so if you want to try you’ll find that information at www.epilepsy.com . Here are the websites for you I found. www.epilepsy.org.uk & www.epilepsynewengland.org . I know our local Epilepsy Foundation has a therapist who I was able to speak with one day. I hope things get better for you & your seizures calm down. Sending Thoughts, Hugs & Prayers. Your friend in Texas, Becky

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A MyEpile...

Thank you guys, these afe all helpful i shall look into them. We do love our family but thwy dont understand what we feel every day. I woukd perfer having a 1-1 sessions not very confident in a group.

It’s so frustrating to hear, how people struggle proving that they have Epilepsy, to their families, friends and sometimes idiot Dr’s and nurses.

But I bet if any of us had leukemia, breast cancer, Alzheimer’s, dementia , Paralyzed, and ect, we would be noticed and shown sympathy. But because Epilepsy is one of those invisible conditions, the mainstream people , don’t believe us. They think we want attention, we are lying , imagining things, making excuses, or what ever they want to believe, other than the truth.

@A MyEpilepsyTeam Member my mum didn't believe me when I said I wasn't well I could feel something wasn't right with my body she told me if i was sick i wouldn't eat takeaway food i was pretty hurt and told her all that matters is that god knows the truth and that im not lying the seizures didn't start till a few a weeks later then after that she realised that it's real because why the hell would I fake being unwell give up my job, willing stop driving when that's the most favorite thing I like doing going for a drive, stay home 24/7 ,literally have no life.
I hope your husband changes his attitude towards you because no one wants to have epilepsy nor do they fake what they go through .

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A MyEpile...

Same here and it seems that it is boring family members. That is why they family members can't come to term with me having this problem. My daughter been knowing since longer than 2011 and my friend of 9years. My friend he try to stop me from talking about any subject of seizures he say, stop talking so you want started a seizure I say want and I try to explain to him. Take ❤ care, Gail.