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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Can Anyone Here Tell Me What To Expect When Applying For Disability?

A MyEpilepsyTeam Member asked a question 💭
Oneida, KY

I have reached a point where trying to work is no longer an option for me. The whole process of applying for disability seems very overwhelming. I did get through the initial application so now I am waiting to see what is next. I was told I may be sent to some specific doctors chosen by the Social Security Administration. I am not currently on any medication because everything I have tried to date makes me sick and my regular doctor said I am "medication resistant". I would just like to have… read more

March 31, 2022
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A MyEpilepsyTeam Member

It took me 2 years to get approved for disability. And that is with the help of an attorney. DO NOT GIVE UP. KEEP APPEALING!!!!! I had to go to a hearing. I was only in there for a few minutes. They only asked me what it feels like. And apologized for it taking 2 years. I even had video from the EMU as well as home video if the seizures. EEG data. Scans, ETC. It can be a very grueling process but keep fighting!!!

April 2, 2022
A MyEpilepsyTeam Member

Traci, I was given a full Neuropsych Workup years ago. After the test, they learned I do not remember the directions to a task well. I also did not carry out the task well. They decided that between that and having to work only on the Bus Routes when they ran, I would not be able to get or keep jobs.

March 11
A MyEpilepsyTeam Member

Everyone here is bringing up really good points and throwing all sorts of information in. In my experience, I was denied so many times and had to appeal their decision. I have medical records going back to when I was a baby. I did the initial app myself but eventually found a service in my area to help me with all the paperwork, they were free of charge. Later on after the last denial I did hire an attourney and she appealed it, we got a date set with the judge ( sadly it was moved the day of due to some of their issues so 2 months later) but they looked at my medical and work history, and had someone who was nin biased from a Vocational Aspect to weigh in. When the judge asked her if there was any jobs I could hold, with my issues she looked and said no during the meeting. I had to wait for the decision in the mail. Sorry it's such a long story but hope it helps! There's tons of hoops I had to jump thro, and if you haven't heard of it and need medical insurance check out Mawd! If you can work at all, like go babysit for someone or anything, it's an income even a little bit. It's income and you may qualify for Mawd

December 17, 2022
A MyEpilepsyTeam Member

Get a good attorney to help you fight for it. I’ve been fighting it for 6 years now. I wish you the best of luck.

December 17, 2022
A MyEpilepsyTeam Member

Thank you both. At this stage I think the best thing for me to do is to have another appointment with my doctor and talk about this in more detail. The doctor is the one who originally said I need to apply, so I think he must have a good handle on things. I have him and my wonderful husband to help me so I will keep at it.

April 2, 2022

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