i do feel that way, no one around me in my life has seizures and everytime i talk about seizures it’s just a weird face from my two only friends:/ so i understand

Not anymore. When I was diagnosed last year, it didn't run in my family and I didn't know anyone with it so I had lots of questions and it was exhausting where everyone in my family thought it meant I was an invalid now- caused a lot of arguments where I had to balance being the bigger person and picking which arguments to engage in and stand up for myself. It was embarrassing when my mother would tell her neighbors and relatives she couldn't talk to them since she needed to make me lunch and I constantly had to tell her to stop. (She is very lonely and I think she is using my diagnosis to also get some attention. I'm very independent, still drive, have only had one seizure this year and work FT.) The arguments are still happening. I would ask my doctor lots of questions and he was very kind and would always respond within 24 hours. I was also told about this group and even though I have never met anyone, it still makes me feel like I have a strong network of people I can now go to - so I don't feel alone. I got my hair cut yesterday and turned out her daughter has epilepsy so she is used to it - wasn't afraid of me. I got a new job where everyone was like, let us know what to do to support you and what isn't helpful. My last job, people were afraid of me once they found out I had epilepsy. This new job is a complete 180. The network one has is defiantly helpful.

Ya, i know the feeling. People think yer high or schitzophrenic or bipolar or retarded or just a plain old b****. It can really ruin yer life. But we're here for you. . .

@A MyEpilepsyTeam Member
I’ve had seizures for over 30 years and I’ve never known or met another person with seizures so I’ve always been a one of a kind.

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A MyEpile...

Thank you for your kind reply.