They said the 1st seizure should have killed me because it was a grand mal seizure. So I got the worst type of seizure as the first one. It did cause nerve damage which repaired over a few years.

Yes knowing its coming and you can't stop it sucks. I knew right away if the right side of my face started going numb its too late to stop the ones I get.

I have learned to get jobs where I deal less with the public and that has helped matters quite a bit. I use to work at Walmart and all of a sudden they happened everyday. It started in 2009. The first one was bad I couldn't see anything and my vision was completely blurred.

When I woke up it depended on how bad it was. But speech being slurred and confusion always happened it seems. A few times I didn't know where I was which I guess scared me the most.

Also, family was not supportive at all. I took myself to all my doctor appointments alone. That included the ones at the hospital which at the time I was and am a independent person and handled everything as usual. But now that I think about it is insulting that no one accompanied me to the hospital visits.

I would not wish this on anyone as it is the worst feeling knowing your going to collapse and passout in a matter of minutes. Mine were consistent if I couldn't stop it I had 10 minutes to get somewhere safe.

Doctors are dickheads any think you're only there to get drugs. But you gotta keep pressing and trying for a diagnoses of "epilepsy". The EEG must catch 2 seizures on different days (don't ask me why) in order to deem someone having epilepsy. So it makes it a little difficult to catch the seizure with the wires attached to your scalp. I did a week-long EEG monitoring to finally get a diagnoses. My seizures usually occur during a full moon or intense solar storms so the timing to catch one is damn near impossible. I was at MAYO Clinic with 50 sensor wires implanted directly into the grey matter of my brain in hopes of catching the focal point of seizures for a resection surgery. I was so scared and tried the best to keep myself calm, but it turned out to be too much cause I WasN'T having any seizures they could monitor. 29 days sitting in the ICU with my skull missing a plate, so they kept me from sleeping and brought me a 5th of vodka to try and induce seizures. Lone behold it worked, and finally I had 14 seizures within a 24 hour period. Surgeons thought they isolated the spot, but at the last second a couple seizures started on the other lobe so the surgery would have been pointless. 27+ years of seizures and still no treatments have worked. Patience is truly a grande virtue to have in this lifetime my friend

Keep trying and grandest of luck to you❤️

I have had numbing sensations before, but not over the entire body. Sounds like the seizure has started right when the numb hits, it just builds, and builds to the generalized part. That must be really scary when you first begin to feel it, cause you KnOW it's going to occur. You just better find a safe spot where you won't hit your head and nestle down...

I always feel VERY confused and my reality is distorted when I come to once again. Amnesia is a big side effect of my seizure types and it will take me a little while (at least a couple hours, or more) to regain my basic Self Awareness such as my current condition, location, and even my name I do not remember at first. Pretty scary, especially if you're alone when it happens. Luckily my seizures are mostly nocturnal so I'm already in bed and my mother is home. But I have to make sure someone is around to hear me so they can apply seizure rescue medicine (Nayzilam) so I don't have additional seizure clusters