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As For A Seizure Diary, How To Keep Track Of The One's You Had, How About The Ones Your Not Sure Of, How Do You Account For Them?

A MyEpilepsyTeam Member asked a question 💭
Lakewood, CO

I know it's a good thing for people to do and take and keep track of, which is good, but just curious about your thoughts and such,

December 28, 2023
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A MyEpilepsyTeam Member

For the ones you’re not sure of, write down the day and time and put a question mark ❓ next to it

December 28, 2023
A MyEpilepsyTeam Member

That's a good question. I would like to know too. If/when you get an answer please let me know...as for a seizure diary,
the seizures you don't know you had, the ones you aren't sure of, how to account for them.

December 29, 2023
A MyEpilepsyTeam Member

Hi Dave7, If it's a questionable I'd put it in that diary along with other 100% positive seizures. For the ones may have or not been seizures I'd have a question mark next to it or wright down questionable. Nothing is perfect, don't struggle to be the only thing perfect with diary, I'm sure a few mistakes are fine. Such as what happen to me at ER the other night. I was taking into ER for doing actions of extreme difference of seizure. They did allot of different types of blood test. I received a call the next day to come back into ER because some my test came back as positive bacterial infection. Went back in had test done again and turned out that it was a mistaken lab reading. So, if medical professionals going to make them, I'd think we should be allowed to do to!

December 31, 2023
A MyEpilepsyTeam Member

For me I don't believe there is a way to keep a precise seizure diary. I say that because I live alone, don't have aftereffects, such as numbness somewhere, or blurry vision from seizures, and I don't have auras before seizure. The way I keep one is when I see something is in an odd area, since sometimes I may move something, have a lil nip on my tongue, have new injury, or wake up in ambulance or hosp. So, mine is just most likely. It seems to me 1-2 if any one of these things happen a month mostly 1-2. Others that due have aura right down that you had an aura, and wright down date and time. If time is noticed to be missing most likely, I would think, was a seizure. If not 100% sure put ? next to it to acknowledge it is questionable if it was a seizure or not. They are best of ways I can think of. Unless you want to where a camara 24/7 and watch it over and over every day. which I'd think look like almost like a frozen screen of yourself on computer. lol The ways I say I think may not be 100% correct on when had seizures or not but give a percentage of how many how often. Nothing is perfect in the world, is it?

December 28, 2023 (edited)
A MyEpilepsyTeam Member

Good

December 28, 2023

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