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? What Is Your Guess On The Amount Of Seizures You Think You Have Had Since The Diagnosis Of The Condition You Have? And Are You Ok With?

A MyEpilepsyTeam Member asked a question 💭
Lakewood, CO

It's ok if you don't want to answer this ❓, but I think I've had since a estimate of last time I did was about 3750 of them, but now about almost 3900 In there, I think that is a about 6 months ago or possibly a year ago, but that is the ones that I am aware of, there may be some of them I had and didn't know if it was a seizure I had, but that is why I give my doc a estimate of the seizures I have had, I am ok with that and so is my doc, what are your thoughts?

6 days ago
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A MyEpilepsyTeam Member

I don’t really know, but I would say under 30. I am fortunate in that they are very well controlled.

5 days ago
A MyEpilepsyTeam Member

I now enter them in my Phone at a Seizure Calendar. I have no idea how many since age 3.

2 days ago
A MyEpilepsyTeam Member

Thank you. My mother looked quite young also. I try to take care of myself.

2 days ago
A MyEpilepsyTeam Member

I don't know for sure Perhaps less than 50. My husband did not start recording me until 2020 and the first seizure was in 2017.

5 days ago
A MyEpilepsyTeam Member

I don't know the number but here are some stats:
I had seizures from ages 3 to 42
I had seizure-free streaks of 3 and 4 years
I spent more time on the road than off and I needed six months w/o a seizure to drive
I had more seizures from ages 3 to 14 than I had from 14 to 42

That's about it.

5 days ago

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