Connect with others who understand.

Sign up Log in
Resources
About MyEpilepsyTeam
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

? What Is Your Guess On The Amount Of Seizures You Think You Have Had Since The Diagnosis Of The Condition You Have? And Are You Ok With?

A MyEpilepsyTeam Member asked a question 💭
Englewood, CO

It's ok if you don't want to answer this ❓, but I think I've had since a estimate of last time I did was about 3750 of them, but now about almost 3900 In there, I think that is a about 6 months ago or possibly a year ago, but that is the ones that I am aware of, there may be some of them I had and didn't know if it was a seizure I had, but that is why I give my doc a estimate of the seizures I have had, I am ok with that and so is my doc, what are your thoughts?

October 30
View reactions
A MyEpilepsyTeam Member

I don’t really know, but I would say under 30. I am fortunate in that they are very well controlled.

October 30
A MyEpilepsyTeam Member

I now enter them in my Phone at a Seizure Calendar. I have no idea how many since age 3.

November 3
A MyEpilepsyTeam Member

Thank you. My mother looked quite young also. I try to take care of myself.

November 2
A MyEpilepsyTeam Member

I don't know for sure Perhaps less than 50. My husband did not start recording me until 2020 and the first seizure was in 2017.

October 31
A MyEpilepsyTeam Member

I don't know the number but here are some stats:
I had seizures from ages 3 to 42
I had seizure-free streaks of 3 and 4 years
I spent more time on the road than off and I needed six months w/o a seizure to drive
I had more seizures from ages 3 to 14 than I had from 14 to 42

That's about it.

October 30

Related content

View All

Since The Condition We Have, Do You Notice Your Seizures More Dif Happening From Before Than Previous And Notice Any Dif Of ? Just Curious

A MyEpilepsyTeam Member asked a question 💭
Englewood, CO

Are You Ok With Say Your Condition And The Meds We Take Or Do You Think There Is A Difference Between The Two? I Think It's Ok About Equal.

A MyEpilepsyTeam Member asked a question 💭
Englewood, CO

Would You Say Your Condition Is Controlled For The Most Part, And Do You Have One Of Your Seizures Or Such Etc Come To You Out Of The Blue?

A MyEpilepsyTeam Member asked a question 💭
Englewood, CO
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in