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I Have Epilepsy AND Pnes...I Cannot Really Identify Specific Triggers. I Basically Stay Home. Only Go Out For Groceries And DR Appts.

A MyEpilepsyTeam Member asked a question 💭
Oneida, KY

Apparently my flight or fight response is broken/non-existent. It is not 1 trauma--it is layer upon layer of trauma since the age of around 2. The rubber band finally just won't stretch any further. I freeze, collapse, or just fall into seizure depending on the situation. And that could even be a dream or a memory! It's frustrating!

January 16, 2024
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Psychogenic Nonepileptic Seizures Explained Read Article...
A MyEpilepsyTeam Member

Thank you.

January 16, 2024
A MyEpilepsyTeam Member

Hang in there and try and stay pos

January 16, 2024
A MyEpilepsyTeam Member

I was recently diagnosed with PNES along with epilepsy ive had past 18yrs. I never knew about PnES. Sometimes I feel both diagnosis, is a big circle. Where one can lead or trigger another one. It definitely can be draining mentally and physically. Trying to learn the difference between a PNES and a seizure is not the easiest, as they both give me an aurora or weird feeling in my body prior. So now, starting treatment and hopefully with that I'll learn more about how to identify the difference between a non epileptic seizure and a seizure.

July 3, 2024
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A MyEpilepsyTeam Member

I would really like more information from you that’s what they think I may have not sure yet? Does this qualify for a disability

January 17, 2024

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