Weight isn't the only thing to go off of. Like how old is he?The different stages of brain development can be a huge factor deciding if it's ready for different things. Plus weight,does he eat legitimately amount/quality, daily water intake,if he has any other disabilities, and much more can all tip the scale. Until you have something solid data don't even ask. Once you've done research consult both physician and a 3rd party.

No it’s not a safe idea to try. The Dr. Knows the limit dosage , going by your sons Weight . Not knowing how high of dosage your son can go, may cause overdoses.

I also understand about resisting the medication(s) . I’m one of those people , who has the same issue. It’s called Refractory Epilepsy.

I’ve been on many different medications and combos of different.medications together. I’m on a combination of 6 medications of different doses, 3times a day. They still don’t have 100%control on my seizures. I’m now have the DBS ( Deep Brain Stimulator ) implant . That’s the only thing that has helped reduce my seizures. But still not fully controlled.

In the past I have tried 25 + yr ago I tried increasing my meds on my own and ended up in the hospital from overdose poisoning .

Holy Molly you’ve been thru a lot!!!Love your attitude!!! Thank you so much for sharing your journey and knowledge. He is on clinical keto diet close to 4 grams of fats for every 1 g of protein. It seems to work out ok, but it does come with lab monitoring and extra supplements ( level carnitine, Creon and bicarb to process fats and prevent kidney stones as keto is known to cause it in the long run.
We’ve tackled a very slow clobazam wean under dr’s strict supervision even used epidiolex which raises clobazam levels without giving more to lessen the side effects and it hopes it’ll be the magic med. It took over 6 months and 2 attempts, but he’s finally off it; however, I’m not sure now if it was actually doing something as he’s super over emotional and a bit aggressive. Not sure if that is what clobazam was keeping at bay or if that is a side effect of phenobarbital combined with Vigabatrin he is on now and daily seizures.
Any feedback would be greatly appreciated.

I have intractable/Drug resistant epilepsy. Diagnosed when 6.5. In the 21 years I've had it, I've gone through over 5 neurologists,5 surgeries including brain resections,implants & more. Some of my physicians weren't what was needed or the quality.Make sure his physician is what you need. They prescribe the meds based of data they collect,they choose the test used to collect the data All starts with them.

Yes, my son was on it for almost 4 years. Just like most benzodiazepines it is very difficult to wean off from.